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梅尼埃病:来自意大利全国性调查的见解

Ménière's Disease: Insights from an Italian Nationwide Survey.

作者信息

Mammarella Fulvio, Loperfido Antonella, Keeling Elizabeth G, Bellocchi Gianluca, Marsili Luca

机构信息

Otolaryngology Unit, San Camillo Forlanini Hospital, 00152 Rome, Italy.

School of Life Sciences, Arizona State University, Tempe, AZ 85281, USA.

出版信息

Audiol Res. 2023 Feb 28;13(2):160-168. doi: 10.3390/audiolres13020016.

Abstract

The aim of the present study was to obtain data from a large community sample of patients with Ménière's disease (MD) in Italy through a web-based nationwide survey. Demographic, clinical, and epidemiological features of MD among members of the Italian Association of Ménière's Disease (AMMI) were collected through a web-based survey. The questionnaire was posted on the AMMI website between 01/SEP/2021 and 31/OCT/2021. A total of 520 patients (374 F, 146 M) with MD were included. The age at interview (average ± standard deviation, SD) was 51.4 ± 10.9 years, with a disease duration of 9.9 ± 9.8 years. Eighty percent of cases were unilateral. No patients reported neurocognitive disorders or Parkinson's disease. A positive family history of MD was reported in 13% of participants, while a history of allergic diseases was reported in 33%. Comorbid thyroid disorders were present in 25% of participants, and 28% used betahistine as the main treatment. To our knowledge, this is the first study that has investigated the epidemiology and current patterns of care of MD in Italy, using an anonymous survey directly sent to patients, thus implying their active participation. We hope that future studies will support the utilization of web-based surveys to address the unmet needs in the management of patients with MD.

摘要

本研究的目的是通过一项基于网络的全国性调查,从意大利梅尼埃病(MD)患者的大型社区样本中获取数据。通过一项基于网络的调查,收集了意大利梅尼埃病协会(AMMI)成员中MD的人口统计学、临床和流行病学特征。调查问卷于2021年9月1日至2021年10月31日发布在AMMI网站上。共纳入了520例MD患者(374例女性,146例男性)。访谈时的年龄(平均值±标准差,SD)为51.4±10.9岁,病程为9.9±9.8年。80%的病例为单侧。没有患者报告有神经认知障碍或帕金森病。13%的参与者报告有MD的阳性家族史,33%的参与者报告有过敏疾病史。25%的参与者存在合并甲状腺疾病,28%的参与者使用倍他司汀作为主要治疗药物。据我们所知,这是第一项利用直接发送给患者的匿名调查来研究意大利MD的流行病学和当前护理模式的研究,这意味着患者的积极参与。我们希望未来的研究将支持利用基于网络的调查来满足MD患者管理中未满足的需求。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/8db7/10037628/5c946f2b748b/audiolres-13-00016-g001.jpg

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