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将一个设在四级癌症中心的青少年和青年项目改编为一个地区癌症中心:为发展定制的支持创造公平获取机会。

Adapting an Adolescent and Young Adult Program Housed in a Quaternary Cancer Centre to a Regional Cancer Centre: Creating Equitable Access to Developmentally Tailored Support.

机构信息

Adolescent and Young Adult Program, Department of Supportive Care, Princess Margaret Cancer Centre, University of Toronto, Toronto, ON M5G 2C4, Canada.

Adolescent and Young Adult Program, Department of Supportive Care, Stronach Regional Cancer Centre, Southlake Regional Health Centre, Newmarket, ON L3Y 2P9, Canada.

出版信息

Curr Oncol. 2024 Feb 27;31(3):1266-1277. doi: 10.3390/curroncol31030095.

Abstract

Adolescents and young adults (AYAs) with cancer, representing those between 15 and 39 years of age, face distinctive challenges balancing their life stage with the physical, emotional, and social impacts of a cancer diagnosis. These challenges include fertility concerns, disruptions to educational and occupational pursuits, issues related to body image and sexual health, and the need for age-appropriate psychosocial support within their communities. The Princess Margaret Cancer Centre (PM), a quaternary care center, established a specialized AYA program in 2014, offering holistic and developmentally tailored psychosocial support and currently, efforts are underway to expand this to other regions in the province to address the need for equitable access. The establishment process involves securing funding, conducting an environmental scan, identifying service gaps, developing clinical pathways, and implementing AYA supportive care. An accessible AYA program should also consider social determinants of health, social location, intersectionality, and an interdisciplinary health approach in understanding health inequities in AYA oncology care. This paper describes the processes implemented and challenges faced in creating a community-based AYA program beyond major resource-rich cities and efforts to address intersectionality.

摘要

青少年和青年癌症患者(AYA)指的是 15 至 39 岁的人群,他们在平衡生活阶段的同时,面临着癌症诊断带来的身体、情感和社会影响所带来的独特挑战。这些挑战包括生育问题、教育和职业追求的中断、与身体形象和性健康相关的问题,以及在社区中获得适合年龄的心理社会支持的需求。作为一家四级保健中心,玛格丽特公主癌症中心(PM)于 2014 年成立了专门的 AYA 项目,提供全面和适合发展阶段的心理社会支持,目前正在努力将其扩展到省内其他地区,以解决公平获得服务的需求。建立该项目涉及到筹集资金、进行环境扫描、确定服务差距、制定临床路径和实施 AYA 支持性护理。一个可及的 AYA 项目还应考虑健康的社会决定因素、社会定位、交叉性和跨学科的健康方法,以了解 AYA 肿瘤护理中的健康不平等问题。本文描述了在主要资源丰富的城市之外创建基于社区的 AYA 项目所实施的过程和面临的挑战,以及解决交叉性问题的努力。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/adf4/10969112/0f2613068685/curroncol-31-00095-g001.jpg

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