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研究自闭症儿童父母的心理社会风险和恢复力指标。

Examining indicators of psychosocial risk and resilience in parents of autistic children.

作者信息

Dimachkie Nunnally Amanda, Factor Reina S, Sturm Alexandra, Valluripalli Soorya Latha, Wainer Allison, Taylor Sandra, Ponzini Matthew, Abbeduto Leonard, Gulsrud Amanda C

机构信息

Department of Psychiatry and Behavioral Sciences, MIND Institute, University of California, Davis, Sacramento, CA, United States.

Semel Institute for Neuroscience and Human Behavior, University of California, Los Angeles, Los Angeles, CA, United States.

出版信息

Front Behav Neurosci. 2023 May 15;17:1102516. doi: 10.3389/fnbeh.2023.1102516. eCollection 2023.

Abstract

BACKGROUND

Parents of autistic children experience increased levels of caregiver strain and adverse mental health outcomes, even in comparison to parents of children with other neurodevelopmental disabilities. Previous studies have largely attributed these increased levels of mental health concerns to their child behavioral concerns and autism symptomatology, but less attention has been given to other potential child factors, such as child adaptive functioning. Additionally, little is known about potential protective factors, such as parents' emotion regulation (ER) abilities, that may ameliorate the experience of caregiver strain, anxiety, and depression.

OBJECTIVE

The current study examined the impact of child characteristics (restricted and repetitive behaviors, adaptive functioning and behavioral concerns) on parent mental health outcomes (caregiver strain, anxiety, depression and wellbeing). Additionally, we explore parents' ER abilities as a moderator of the impact of child characteristic on parents' mental health outcomes.

RESULTS

Results of linear mixed effect models indicated a significant relationship between parents' ER abilities and all four parent outcomes. Additionally, children's adaptive functioning abilities and repetitive behaviors (RRBs) were significant predictors of caregiving strain. Parents' ER abilities were a significant moderator of the effect of children's repetitive behaviors and adaptive functioning challenges on caregiver strain, such that better ER abilities mitigated the impact of child clinical factors on caregiver strain. Finally, a significant difference was detected for mothers' and fathers' mental health, with mothers reporting higher caregiver strain, and more symptoms of anxiety and depression than did fathers.

CONCLUSION

This study leveraged a large sample of autistic children and their biological parents to examine the relationship between children's clinical characteristics and parents' psychological wellbeing. Results indicate that, although parents of autistic children do experience high rates of internalizing mental health concerns that relate to child adaptive functioning and RRBs, parent ER abilities act as a protective factor against parents' adverse mental health outcomes. Further, mothers in our sample reported significantly higher rates of depression, anxiety, and caregiver strain, as compared with fathers.

摘要

背景

自闭症儿童的父母承受着更高水平的照料压力,心理健康状况也较差,即便与其他神经发育障碍儿童的父母相比也是如此。以往的研究大多将这些心理健康问题的增加归因于孩子的行为问题和自闭症症状,但对其他潜在的儿童因素,如儿童的适应功能,关注较少。此外,对于可能减轻照料压力、焦虑和抑郁体验的潜在保护因素,如父母的情绪调节(ER)能力,人们了解甚少。

目的

本研究考察了儿童特征(受限和重复行为、适应功能及行为问题)对父母心理健康结果(照料压力、焦虑、抑郁和幸福感)的影响。此外,我们探讨了父母的情绪调节能力作为儿童特征对父母心理健康结果影响的调节因素。

结果

线性混合效应模型的结果表明,父母的情绪调节能力与所有四项父母结果之间存在显著关系。此外,儿童的适应功能能力和重复行为是照料压力的重要预测因素。父母的情绪调节能力是儿童重复行为和适应功能挑战对应激压力影响的重要调节因素,即更好的情绪调节能力减轻了儿童临床因素对应激压力的影响。最后,在母亲和父亲的心理健康方面发现了显著差异,母亲报告的照料压力更高,焦虑和抑郁症状比父亲更多。

结论

本研究利用大量自闭症儿童及其亲生父母样本,考察了儿童临床特征与父母心理健康之间的关系。结果表明,尽管自闭症儿童的父母确实经历了与儿童适应功能和重复行为相关的内化心理健康问题,但父母的情绪调节能力是防止父母出现不良心理健康结果的保护因素。此外,与父亲相比,我们样本中的母亲报告的抑郁、焦虑和照料压力发生率显著更高。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/4875/10226532/95f383fbdf90/fnbeh-17-1102516-g001.jpg

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