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帕金森病患者的职业表现技能:与健康相关的生活质量和照顾者负担的关系。

Occupational performance skills in Parkinson's disease: relationship with health-related quality of life and caregiver burden.

机构信息

Universidad Rey Juan Carlos, Alcorcón, España.

Hospital Universitario Fundación Alcorcón, 28922 Alcorcón, España.

出版信息

Rev Neurol. 2023 Jul 1;77(1):3-11. doi: 10.33588/rn.7701.2023097.

Abstract

INTRODUCTION

The progression of Parkinson's disease (PD) results in a loss of ability to performance activities of daily living and health-related quality of life. The objectives of this study were to establish the relations between occupational performance skills and health-related quality of life, and the degree of caregiver burden in PD patients.

PATIENTS AND METHODS

Forty-nine patients at different stages of PD according to the Hoehn and Yahr scale participated in the study. Patients were assessed using the Parkinson's Disease Questionnaire (PDQ-39), the EuroQoL (EQ-5D), the Assessment of Motor and Process Skills (AMPS), and the Zarit Caregiver Burden Interview (ZCBI).

RESULTS

Strong correlations were found between the motor skills section of the AMPS scale and the PDQ-39 (r = -0.76; p = 0.001), and the EQ-5D questionnaires (r = 0.72; p = 0.001), while moderate correlations were found with the process skills. AMPS process skills were moderately correlated with mobility and activities of daily living. The ZCBI was only weakly correlated with the AMPS motor skills (r = -0.34; p = 0.02).

CONCLUSION

Declining scores on the AMPS scale are closely related to the loss of health-related quality of life in PD patients, and, to a lesser extent, with the degree of caregiver burden.

摘要

简介

帕金森病(PD)的进展导致患者丧失日常生活活动能力和与健康相关的生活质量。本研究的目的是确定 PD 患者的职业表现技能与健康相关生活质量以及照顾者负担程度之间的关系。

患者和方法

49 名处于 Hoehn 和 Yahr 量表不同阶段的 PD 患者参与了本研究。使用帕金森病问卷(PDQ-39)、欧洲五维健康量表(EQ-5D)、动作和过程技能评估(AMPS)和 Zarit 照顾者负担量表(ZCBI)对患者进行评估。

结果

AMPS 量表的运动技能部分与 PDQ-39(r = -0.76;p = 0.001)和 EQ-5D 问卷(r = 0.72;p = 0.001)之间存在很强的相关性,而与过程技能之间存在中度相关性。AMPS 过程技能与移动能力和日常生活活动能力中度相关。ZCBI 与 AMPS 运动技能仅存在弱相关性(r = -0.34;p = 0.02)。

结论

AMPS 量表评分下降与 PD 患者健康相关生活质量的丧失密切相关,在较小程度上与照顾者负担程度相关。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/01ad/10663805/86324ffa4417/RN-77-3-g001.jpg

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