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创建一个成瘾与慢性病统计分析实验室:巴热斯地区专业化与竞争力项目(PECT BAGESS)方案

Creation of a Laboratory for Statistics and Analysis of Dependence and Chronic Conditions: Protocol for the Bages Territorial Specialization and Competitiveness Project (PECT BAGESS).

作者信息

Pujolar-Díaz Georgina, Vidal-Alaball Josep, Forcada Anna, Descals-Singla Elisabet, Basora Josep

机构信息

Unitat de Suport a la Recerca de la Catalunya Central, Fundació Institut Universitari per a la Recerca a l'Atenció Primària de Salut Jordi Gol i Gurina, Sant Fruitós de Bages, Spain.

Health Promotion in Rural Areas Research Group, Gerència Territorial de la Catalunya Central, Institut Català de la Salut, Sant Fruitós de Bages, Spain.

出版信息

JMIR Res Protoc. 2023 Jul 26;12:e46542. doi: 10.2196/46542.

DOI:10.2196/46542
PMID:37494102
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10413236/
Abstract

BACKGROUND

With the increasing prevalence of chronic diseases, partly due to the increase in life expectancy and the aging of the population, the complexity of the approach faced by the structures, dynamics, and actors that are part of the current care and attention systems is evident. The territory of Bages (Catalonia, Spain) presents characteristics of a highly complex ecosystem where there is a need to develop new, more dynamic structures for the various actors in the health and social systems, aimed at incorporating new actors in the technological and business field that would allow innovation in the management of this context. Within the framework of the Bages Territorial Specialization and Competitiveness Project (PECT BAGESS), the aim is to address these challenges through various entities that will develop 7 interrelated operations. Of these, the operation of the IDIAP Jordi Gol-Catalan Health Institute focuses on the creation of a Laboratory for Statistics and Analysis of Dependence and Chronic Conditions in the Bages region, in the form of a database that will collect the most relevant information from the different environments that affect the management of chronic conditions and dependence: health, social, economic, and environment.

OBJECTIVE

This study aims to create a laboratory for statistical, dependence, and chronic condition analysis in the Bages region, to determine the chronic conditions and conditions that generate dependence in the Bages area, in order to propose products and services that respond to the needs of people in these situations.

METHODS

PECT BAGESS originated from the Shared Agenda initiative, which was established in the Bages region with the goal of enhancing the quality of life and fostering social inclusion for individuals with chronic diseases. This study presents part of this broader project, consisting of the creation of a database. Data from chronic conditions and dependence service providers will be combined, using a unique identifier for the different sources of information. A thorough legal analysis was conducted to establish a secure data sharing mechanism among the entities participating in the project.

RESULTS

The laboratory will be a key piece in the structure generated in the environment of the PECT BAGESS, which will allow relevant information to be passed on from the different sectors involved to respond to the needs of people with chronic conditions and dependence, as well as to generate opportunities for products and services.

CONCLUSIONS

The emerging organizational dynamics and structures are expected to demonstrate a health and social management model that may have a remarkable impact on these sectors. Products and services developed may be very useful for generating synergies and facilitating the living conditions of people who can benefit from all these services. However, secure data sharing circuits must be considered.

INTERNATIONAL REGISTERED REPORT IDENTIFIER (IRRID): PRR1-10.2196/46542.

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/5d03/10413236/66b34ab9f065/resprot_v12i1e46542_fig5.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/5d03/10413236/31b8b93f7cf4/resprot_v12i1e46542_fig1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/5d03/10413236/868f8ae68eb8/resprot_v12i1e46542_fig2.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/5d03/10413236/26e47194fe2f/resprot_v12i1e46542_fig3.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/5d03/10413236/e2c4a3b2084e/resprot_v12i1e46542_fig4.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/5d03/10413236/66b34ab9f065/resprot_v12i1e46542_fig5.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/5d03/10413236/31b8b93f7cf4/resprot_v12i1e46542_fig1.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/5d03/10413236/868f8ae68eb8/resprot_v12i1e46542_fig2.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/5d03/10413236/26e47194fe2f/resprot_v12i1e46542_fig3.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/5d03/10413236/e2c4a3b2084e/resprot_v12i1e46542_fig4.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/5d03/10413236/66b34ab9f065/resprot_v12i1e46542_fig5.jpg
摘要

背景

随着慢性病患病率的不断上升,部分原因是预期寿命的增加和人口老龄化,当前护理和关注系统中的结构、动态和参与者所面临方法的复杂性显而易见。巴耶斯地区(西班牙加泰罗尼亚)呈现出高度复杂的生态系统特征,需要为卫生和社会系统中的各类参与者开发新的、更具活力的结构,目标是将技术和商业领域的新参与者纳入其中,以推动该环境管理方面的创新。在巴耶斯地区专业化与竞争力项目(PECT BAGESS)的框架内,旨在通过将开展7项相互关联行动的各种实体来应对这些挑战。其中,IDIAP Jordi Gol - 加泰罗尼亚健康研究所的行动重点是在巴耶斯地区创建一个依赖与慢性病统计分析实验室,其形式为一个数据库,该数据库将收集来自影响慢性病管理和依赖的不同环境(健康、社会、经济和环境)的最相关信息。

目的

本研究旨在在巴耶斯地区创建一个用于统计、依赖和慢性病分析的实验室,以确定巴耶斯地区导致依赖的慢性病和状况,从而提出满足这些情况下人们需求的产品和服务。

方法

PECT BAGESS源自共享议程倡议,该倡议在巴耶斯地区设立,目标是提高慢性病患者的生活质量并促进其社会包容。本研究展示了这个更广泛项目的一部分,即创建一个数据库。将使用不同信息源的唯一标识符合并慢性病和依赖服务提供者的数据。进行了全面的法律分析,以在参与项目的实体之间建立安全的数据共享机制。

结果

该实验室将是PECT BAGESS环境中所构建结构的关键部分,这将使相关信息能够从涉及的不同部门传递出来,以满足慢性病和依赖患者的需求,并为产品和服务创造机会。

结论

新兴的组织动态和结构有望展现出一种可能对这些部门产生显著影响的健康和社会管理模式。所开发的产品和服务可能对产生协同效应以及改善能够受益于所有这些服务的人们的生活条件非常有用。然而,必须考虑安全的数据共享回路。

国际注册报告标识符(IRRID):PRR1 - 10.2196/46542。

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