Jonathan Safer-Lichtenstein, Laura Lee McIntyre, Geovanna Rodriguez, and Douglas Gomez, University of Oregon.
Stephanie Puerta and Cameron L. Neece, Loma Linda University.
Intellect Dev Disabil. 2023 Aug 1;61(4):307-325. doi: 10.1352/1934-9556-61.4.307.
Hispanic/Latinx parents of children with developmental delays/disabilities (DD) face disparities in service access and research participation. In the present study, 60 Spanish-speaking caregivers of young children with DD participated in randomly assigned stress reduction interventions (psychoeducation/support groups or Mindfulness-Based Stress Reduction [MBSR]), followed by behavioral parent training (BPT). Caregiver attendance and satisfaction ratings were measured, and focus groups gathered additional information on caregivers' takeaways from the interventions. Caregivers demonstrated high satisfaction across interventions, with slightly greater preference for psychoeducation/support groups, and qualitative data indicated that the relevance of the information and style of delivery may be responsible. Researchers and clinicians may attain greater engagement with this population by focusing on intervention services that include psychoeducation and peer support elements.
发育迟缓/障碍 (DD) 儿童的西班牙裔/拉丁裔父母在服务获取和研究参与方面存在差异。在本研究中,60 名讲西班牙语的幼儿发育迟缓儿童的照顾者参加了随机分配的减压干预(心理教育/支持小组或基于正念的减压 [MBSR]),随后进行了行为家长培训 (BPT)。测量了照顾者的出勤率和满意度评分,并通过焦点小组收集了有关照顾者从干预措施中获得的信息的其他信息。照顾者对干预措施表现出高度的满意度,对心理教育/支持小组的偏好略高,定性数据表明,信息的相关性和传递方式可能是原因。研究人员和临床医生可以通过专注于包括心理教育和同伴支持元素的干预服务来提高与该人群的参与度。