Health Science University, Sultan Abdulhamid Han Training and Research Hospital, Department of Physical Medicine and Rehabilitation, Selimiye, Tıbbiye Caddesi, Uskudar, 34668, Istanbul, Turkey.
Sante Medical Center, Department of Physical Medicine and Rehabilitation, Fenerbahce, Fener Kalamis Cd. No:32, Kadıkoy, Istanbul, 34726, Turkey.
J Cancer Surviv. 2022 Oct;16(5):1016-1022. doi: 10.1007/s11764-021-01093-9. Epub 2021 Aug 4.
Searching for information on the Internet, especially YouTube, is gaining popularity for cancer survivors. Based on the topic of online health information, the importance of studies using YouTube data for various cancer types and treatment methods has increased. This study aims to investigate the quality, reliability, and accuracy of YouTube videos on cancer rehabilitation (CR).
YouTube search was performed on February 26th, 2021, with two keyword sets: "cancer rehabilitation" and "oncology rehabilitation." The modified DISCERN, the Journal of the American Medical Association (JAMA) scoring system, and the Global Quality Score (GQS) were used to evaluate the quality and reliability of the videos. The features of each video such as the number of likes, dislikes, and views, upload date, duration, like ratio, and the uploader profile were also collected.
Fifty-three of the first 200 videos shown in the search results met the criteria. Most of the videos were low quality. The most common uploader profile was academic institute/university hospital. The three most common subjects in the videos were CR definition, physical therapy and occupational therapy, and patient experiences. The mean modified DISCERN, JAMA, and GQS scores were 2.14, 2.03, and 2.78, respectively. Higher quality videos had longer duration, greater number of views, and better reliability scores.
The results showed that most of the rated videos were of low-quality and didn't provide sufficient information on the topic discussed. Higher-quality and more accurate YouTube videos are needed to increase awareness of CR.
For cancer survivors, CR-related YouTube video content often provides information of low reliability. In this context, it is necessary to focus on the production of video content that includes clinical guides, references, and are based on clinical-based practices.
互联网搜索，尤其是 YouTube，在癌症幸存者中越来越受欢迎。基于在线健康信息这一主题，使用 YouTube 数据研究各种癌症类型和治疗方法的重要性日益增加。本研究旨在调查癌症康复（CR）相关的 YouTube 视频的质量、可靠性和准确性。
于 2021 年 2 月 26 日在 YouTube 上进行了两次关键词搜索：“癌症康复”和“肿瘤康复”。使用修改后的 DISCERN、《美国医学会杂志》（JAMA）评分系统和全球质量评分（GQS）来评估视频的质量和可靠性。还收集了每个视频的点赞数、点赞率、观看次数、上传日期、时长、上传者资料等特征。
在搜索结果的前 200 个视频中，有 53 个符合标准。大多数视频的质量较低。最常见的上传者资料是学术机构/大学医院。视频中最常见的三个主题是 CR 定义、物理治疗和职业治疗以及患者体验。修改后的 DISCERN、JAMA 和 GQS 评分的平均值分别为 2.14、2.03 和 2.78。质量较高的视频时长较长、观看次数较多且可靠性得分较高。
结果表明，大多数评分视频的质量较低，没有提供足够的主题讨论信息。需要提高 CR 相关的高质量、更准确的 YouTube 视频数量以提高意识。
对于癌症幸存者来说，CR 相关的 YouTube 视频内容通常提供的可靠性较低。在这种情况下，有必要专注于制作包括临床指南、参考资料并基于临床实践的视频内容。
