Vaitkevičienė Goda Elizabeta, Ažukaitis Karolis, Jankauskienė Augustina, Petrėnė Justė, Puronaitė Roma, Trinkūnas Justas, Jankauskienė Danguolė
Center of Pediatric Oncology and Hematology, Vilnius University Hospital Santaros Klinikos, 08406 Vilnius, Lithuania.
Institute of Clinical Medicine, Faculty of Medicine, Vilnius University, 03101 Vilnius, Lithuania.
Healthcare (Basel). 2023 Aug 14;11(16):2290. doi: 10.3390/healthcare11162290.
Patient-centered care is recognized as a key element in recent healthcare management strategies. However, the integrated collection of patient feedback capturing the entire journey of patients with complex medical conditions remains understudied. Herein, we aimed to describe the development of an instrument prototype for the collection of PROMs and PREMs that would encompass a whole patient journey at a single time point. We further describe the process of its integration into a hospital's information system (HIS) and the results of a pilot feasibility study in adult patients with kidney and hematological diseases. We developed an instrument consisting of original PREM and generic EQ-5D-5L questionnaires. E-questionnaires were handled with REDCap software (version 12.5.14) and integrated into the HIS. Patients refusing to use e-questionnaires (48%) were offered paper administration and were older (64 vs. 50 years). The overall response rate for e-questionnaires was 57.1% with a median completion time of 2.0 and 3.7 min for PROM and PREM, respectively. Psychological and social services and primary care setting (diagnosis establishment and involvement in continuous care) were identified as most problematic. The majority of PREM dimensions encompassing different levels of care significantly correlated with PROM responses. Our data indicate the feasibility and potential relevance of the proposed approach, although wider-scale studies in diverse settings are needed.
以患者为中心的护理被认为是近期医疗管理策略的关键要素。然而，针对患有复杂疾病的患者整个就医过程的患者反馈综合收集仍未得到充分研究。在此，我们旨在描述一种用于收集患者报告结局测量信息（PROMs）和患者体验测量信息（PREMs）的工具原型的开发，该原型将在单个时间点涵盖患者的整个就医过程。我们还进一步描述了将其整合到医院信息系统（HIS）的过程以及在成年肾脏和血液疾病患者中进行的试点可行性研究结果。我们开发了一种由原始的PREM问卷和通用的EQ - 5D - 5L问卷组成的工具。电子问卷通过REDCap软件（版本12.5.14）处理并整合到HIS中。拒绝使用电子问卷的患者（48%）接受纸质问卷，且年龄较大（64岁对50岁）。电子问卷的总体回复率为57.1%，PROM和PREM的中位完成时间分别为2.0分钟和3.7分钟。心理和社会服务以及初级医疗环境（诊断确立和参与持续护理）被确定为最具问题的方面。涵盖不同护理水平的大多数PREM维度与PROM回复显著相关。我们的数据表明了所提出方法的可行性和潜在相关性，尽管需要在不同环境中进行更广泛的研究。
