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Reflections on my experiences as a non-autistic autism researcher.

作者信息

Thompson-Hodgetts Sandy

机构信息

University of Alberta, Canada.

出版信息

Autism. 2023 Jan;27(1):259-261. doi: 10.1177/13623613221121432. Epub 2022 Sep 2.

DOI:10.1177/13623613221121432
PMID:36056606
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC9806471/
Abstract
摘要

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本文引用的文献

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"We couldn't think in the box if we tried. We can't even find the damn box": A qualitative study of the lived experiences of autistic adults and relatives of autistic adults.“就算我们想,也无法在框框内思考。我们甚至都找不到那个该死的框框”:一项关于自闭症成年人及其成年亲属生活经历的定性研究。
PLoS One. 2022 Mar 14;17(3):e0264932. doi: 10.1371/journal.pone.0264932. eCollection 2022.
2
Participatory Autism Research: How Consultation Benefits Everyone.参与式自闭症研究:咨询如何使各方受益。
Front Psychol. 2021 Aug 24;12:713982. doi: 10.3389/fpsyg.2021.713982. eCollection 2021.
3
Autistic peer-to-peer information transfer is highly effective.自闭症患者之间的信息传递非常有效。
Autism. 2020 Oct;24(7):1704-1712. doi: 10.1177/1362361320919286. Epub 2020 May 20.
4
Making the future together: Shaping autism research through meaningful participation.共同创造未来:通过有意义的参与塑造自闭症研究。
Autism. 2019 May;23(4):943-953. doi: 10.1177/1362361318786721. Epub 2018 Aug 10.
5
"Putting on My Best Normal": Social Camouflaging in Adults with Autism Spectrum Conditions.“展现我最佳的常态”:自闭症谱系障碍成年人的社交伪装
J Autism Dev Disord. 2017 Aug;47(8):2519-2534. doi: 10.1007/s10803-017-3166-5.
6
Whose Expertise Is It? Evidence for Autistic Adults as Critical Autism Experts.这是谁的专业知识?成年自闭症患者作为关键自闭症专家的证据。
Front Psychol. 2017 Mar 28;8:438. doi: 10.3389/fpsyg.2017.00438. eCollection 2017.
7
Characterizing the daily life, needs, and priorities of adults with autism spectrum disorder from Interactive Autism Network data.利用交互式自闭症网络数据描述自闭症谱系障碍成年人的日常生活、需求和优先事项。
Autism. 2015 Oct;19(7):794-804. doi: 10.1177/1362361315583818. Epub 2015 May 11.
8
What should autism research focus upon? Community views and priorities from the United Kingdom.自闭症研究应关注什么?来自英国的社区观点和优先事项。
Autism. 2014 Oct;18(7):756-70. doi: 10.1177/1362361314529627. Epub 2014 Apr 30.
9
Collaboration strategies in nontraditional community-based participatory research partnerships: lessons from an academic−community partnership with autistic self-advocates.非传统社区参与式研究伙伴关系中的合作策略:来自与自闭症自我倡导者的学术-社区伙伴关系的经验教训。
Prog Community Health Partnersh. 2011 Summer;5(2):143-50. doi: 10.1353/cpr.2011.0022.
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'I just don't fit anywhere': support experiences and future support needs of individuals with Asperger syndrome in middle adulthood.“我就是找不到自己的位置”:中年期阿斯伯格综合征个体的支持体验和未来支持需求。
Autism. 2012 Sep;16(5):532-46. doi: 10.1177/1362361311405223. Epub 2011 May 24.