Chien Shuo-Chen, Chang Yu-Hung, Yen Chia-Ming, Onthoni Djeane Debora, Wu I-Chien, Hsu Chih-Cheng, Chiou Hung-Yi, Chung Ren-Hua
Institute of Population Health Sciences, National Health Research Institutes, Miaoli County, 350, Taiwan.
National Center for Geriatrics and Welfare Research, National Health Research Institutes, Yunlin County, 632, Taiwan.
Aging Clin Exp Res. 2023 Dec;35(12):2873-2885. doi: 10.1007/s40520-023-02582-w. Epub 2023 Nov 1.
With the increase in the aging population, informal caregivers have become an essential pillar for the long-term care of older individuals. However, providing care can have a negative impact and increase the burden on caregivers, which is a cause for concern.
This study aimed to comprehensively depict the concept of "informal caregiver burden" through bibliometric and content analyses.
We searched the Web of Science (WoS) database to obtain bibliometric data and included only papers published between 2013 and 2022. We used content analysis to extract and identify the core concepts within the text systematically.
Altogether, 934 papers were included in the bibliometric analysis, from which we selected 19 highly impactful papers for content analysis. The results indicate that researchers have focused on exploring the factors that impact informal caregiver burden. Meanwhile, there has been a widespread discussion regarding the caregiver burden among those caring for recipients with specific illnesses, such as dementia, Alzheimer's disease, and cancer, as these illnesses can contribute to varying levels of burden on informal caregivers. In addition, questionnaires and interviews emerged as the predominant methods for data collection in the realm of informal caregiver research. Furthermore, we identified 26 distinct assessment tools specifically tailored for evaluating burden, such as caregiver strain index (CSI).
For future studies, we suggest considering the intersectionality of factors contributing to the burden on informal caregivers. This approach could enhance the well-being of both caregivers and older care recipients.
随着老年人口的增加，非正式照料者已成为老年人长期照料的重要支柱。然而，提供照料可能会产生负面影响并增加照料者的负担，这令人担忧。
本研究旨在通过文献计量分析和内容分析全面描述“非正式照料者负担”的概念。
我们检索了科学网（WoS）数据库以获取文献计量数据，仅纳入2013年至2022年发表的论文。我们使用内容分析系统地提取和识别文本中的核心概念。
文献计量分析共纳入934篇论文，从中我们选择了19篇高影响力论文进行内容分析。结果表明，研究人员专注于探索影响非正式照料者负担的因素。同时，在照料患有特定疾病（如痴呆症、阿尔茨海默病和癌症）的受助者的人群中，关于照料者负担的讨论也很广泛，因为这些疾病会给非正式照料者带来不同程度的负担。此外，问卷调查和访谈成为非正式照料者研究领域中主要的数据收集方法。此外，我们确定了26种专门用于评估负担的不同评估工具，如照料者压力指数（CSI）。
对于未来的研究，我们建议考虑导致非正式照料者负担的因素的交叉性。这种方法可以提高照料者和老年受助者的福祉。
