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用于量化一般健康状况的主观和客观生活质量评分(SOQOLTM):初步研究及初始规范人群值。

The subjective and objective quality of life score (SOQOLTM) for the quantification of general health status: a preliminary study with initial normative population values.

机构信息

NeuroSpine Surgery Research Group (NSURG), Sydney, Australia.

NeuroSpine Clinic, Prince of Wales Private Hospital, Randwick, Australia.

出版信息

J Patient Rep Outcomes. 2024 Jan 18;8(1):7. doi: 10.1186/s41687-024-00684-1.

Abstract

BACKGROUND

Established health-related quality of life scores do not consider both subjective and objective indices of health. We propose the subjective and objective quality of life score (SOQOL) for the comprehensive assessment of health-related quality of life and aim to provide normative population data. The SOQOL is compatible with smartphone applications, allowing widespread use on a global scale.

METHODS

Normative SOQOL population data was sourced from pre-existing datasets on the EQ-5D-5L, daily step count, and walking speed. Normative values were calculated using weighted grand means. We trialled the SOQOL in a group of five patients presenting to a spinal neurosurgery clinic.

RESULTS

SOQOL scores decreased with age, and women had lower scores in every age group. In our case series, the spine patients with the biggest SOQOL deficit compared to age- and sex-matched population averages were found to be surgical while the rest were non-surgical.

CONCLUSIONS

The SOQOL shows promise as a simple and effective scoring tool that is compatible with smartphones, potentially useful for screening in primary and specialized care settings, and for assessment following healthcare interventions. This study, however, is preliminary, and the findings are primarily suggestive. They underline the necessity for future, more comprehensive studies to validate and expand upon these initial observations. The conclusion of both this abstract and the full paper will clearly state these limitations and the preliminary nature of the study.

摘要

背景

已有的健康相关生活质量评分并未同时考虑健康的主观和客观指标。我们提出主观和客观生活质量评分(SOQOL)以全面评估健康相关生活质量,并旨在提供规范性人群数据。SOQOL 与智能手机应用程序兼容,可在全球范围内广泛使用。

方法

从 EQ-5D-5L、日常步数和步行速度的现有数据集获取规范的 SOQOL 人群数据。使用加权总平均值计算规范值。我们在一组五名就诊于脊柱神经外科诊所的患者中试用了 SOQOL。

结果

SOQOL 评分随年龄增长而降低,女性在每个年龄组的评分都较低。在我们的病例系列中,与年龄和性别匹配的人群平均值相比,脊柱患者的 SOQOL 缺陷最大,这些患者是手术治疗的,而其余患者是非手术治疗的。

结论

SOQOL 作为一种简单有效的评分工具具有潜力,与智能手机兼容,可能对初级和专科保健环境中的筛查以及医疗保健干预后的评估有用。然而,本研究尚属初步,结果主要是提示性的。它们强调了未来进行更全面研究以验证和扩展这些初步观察的必要性。本摘要和全文的结论都将明确指出这些局限性以及研究的初步性质。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/a7f2/10796876/ae303a6a5977/41687_2024_684_Fig1_HTML.jpg

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