Department of Family and Community Medicine, College of Medicine, King Khalid University, Abha, Saudi Arabia.
College of Medicine, King Khalid University, Abha, Saudi Arabia.
Medicine (Baltimore). 2024 Jun 14;103(24):e38102. doi: 10.1097/MD.0000000000038102.
Attention-deficit hyperactivity disorder (ADHD) is the most common neurodevelopmental disorder in childhood. This study investigates the quality of life (QoL) of parents of children with ADHD, the discrimination they encounter, and their sources of information about the disorder. This cross-sectional study was conducted using an online questionnaire through Google Forms from March to April 2023. Study participants were recruited using a convenient sampling technique from patient records in 4 regions of Saudi Arabia. The questionnaire was sent through commonly used social media. QoL was assessed through the validated Arabic version of the World Health Organization Quality of Life Instrument, Short Form questionnaire. A total of 100 participants were recruited for this study. Most of the participants were from the southern region (80%, n = 80), 66.0% (n = 66) were mothers, 66.0% (n = 66) were married and 64% (n = 64) had a college degree. The mean scores of the physical, psychological, mental, environmental, total scales, and general QoL were (57.18 ± 13.67, 62.58 ± 17.49, 63.33 ± 23.12, 23.07 ± 12.87, 51.54 ± 14.34, 3.69 ± 1.06, respectively). Half of the population studied experienced discrimination with no significant differences between mothers and fathers (64% vs 68%, P = .833). The main source of information on ADHD was the Internet (49%) followed by schools (11%), and relatives (10%). Fifty-four percent of the participants have participated in workshops or seminars on neurodevelopmental disorders and 39.0% believed that schools and institutions are sufficiently equipped to support children with ADHD. ADHD had a profound impact on the QoL of parents, with a substantial portion facing discrimination due to their child condition. Additionally, parents showed a strong desire to acquire more information about ADHD, highlighting the need for a comprehensive understanding and support surrounding this condition.
注意缺陷多动障碍（ADHD）是儿童中最常见的神经发育障碍。本研究调查了 ADHD 患儿父母的生活质量（QoL）、他们所面临的歧视以及他们获取有关该疾病信息的来源。这项横断面研究使用 Google 表格的在线问卷于 2023 年 3 月至 4 月进行。研究参与者采用方便抽样技术，从沙特阿拉伯 4 个地区的患者记录中招募。通过常用的社交媒体发送问卷。通过经过验证的阿拉伯语版世界卫生组织生活质量仪器简短问卷评估生活质量。共有 100 名参与者参加了这项研究。大多数参与者来自南部地区（80%，n=80），66.0%（n=66）是母亲，66.0%（n=66）已婚，64%（n=64）拥有大学学历。身体、心理、精神、环境、总分和一般生活质量的平均得分为（57.18±13.67、62.58±17.49、63.33±23.12、23.07±12.87、51.54±14.34、3.69±1.06）。研究人群中有一半经历过歧视，但父母之间没有显著差异（64%对 68%，P=0.833）。ADHD 的主要信息来源是互联网（49%），其次是学校（11%）和亲戚（10%）。54%的参与者参加过神经发育障碍研讨会或研讨会，39.0%的人认为学校和机构有足够的设备来支持 ADHD 儿童。ADHD 对父母的生活质量产生了深远的影响，相当一部分父母因孩子的病情而面临歧视。此外，父母表现出强烈的愿望去获取更多关于 ADHD 的信息，这突出表明需要对这种情况有一个全面的理解和支持。
