Algadeeb Jihad, AlSaleh Essa Mohammed, AlGadeeb Rahma B, Alkhoufi Huda Abdulaziz S, Alsaad Ali Jawad
Preventive Medicine, Al-Ahsa Health Cluster, Ministry of Health, Al-Ahsa, SAU.
Infection Control, Directorate of Health Affairs, Ministry of Health, Al-Ahsa, SAU.
Cureus. 2024 Sep 25;16(9):e70161. doi: 10.7759/cureus.70161. eCollection 2024 Sep.
Background Attention deficit hyperactivity disorder (ADHD) is the most prevalent neurobehavioral disorder in children and teenagers. The condition is debilitating, affecting numerous cognitive and behavioral processes and leading to substantial long-term consequences. Affected individuals, their families, and society as a whole bear a heavy functional, psychological, and financial cost. Aim The objective of this study was to evaluate the quality of life (QOL) among parents of children with ADHD diagnoses, as well as the burden and level of dysfunction in the family. Additionally, to ascertain the sociodemographic factors that influence these issues. Methods This cross-sectional study used an online survey to collect data from caregivers of children with a confirmed diagnosis of any type of ADHD who were exhibiting symptoms before the age of seven, speaking Arabic fluently and consented to take part in the study. The Arabic version questionnaire of the World Health Organization Quality of Life instrument (WHOQOL-BREF) was used to assess the QOL, and the Zarit Burden Interview questionnaire was employed to assess the degree of the experienced burden. Participants were recruited by a systematic random sampling method. Results A total of 103 ADHD caregivers were included in the study. A total of 89 out of 103 (86.4%) participants reported having various degrees of burden. There was a significant relation between the marital status of the caregiver and the degree of burden (p=0.024). Divorced caregivers were (4, 57.1%) severely burdened. Ninety out of 103 participants (87.4%) reported having dysfunctional families, and the majority of them (60, 60.1%) reported moderate family dysfunction. All quality-of-life domains were negatively impacted, with the environmental domain experiencing the most disruption. The overall four subdomains of QOL did not differ significantly with various sociodemographic characteristics. Conclusion There was a high prevalence of burden and family dysfunction among caregivers of ADHD children. Marital status was associated with a significant impact on the level of burden. In addition, there was a detrimental influence on every aspect of quality of life, with the environmental domain suffering the most. It is important to take into account family therapy and other interventions that strengthen caregivers' and families' relationships.
背景
注意缺陷多动障碍(ADHD)是儿童和青少年中最常见的神经行为障碍。这种疾病使人衰弱,影响众多认知和行为过程,并导致严重的长期后果。受影响的个体、他们的家庭以及整个社会都承受着沉重的功能、心理和经济负担。
目的
本研究的目的是评估被诊断患有ADHD的儿童的父母的生活质量(QOL),以及家庭中的负担和功能障碍程度。此外,确定影响这些问题的社会人口学因素。
方法
这项横断面研究使用在线调查从确诊患有任何类型ADHD且在7岁前出现症状、能流利说阿拉伯语并同意参与研究的儿童的照料者那里收集数据。使用世界卫生组织生活质量量表(WHOQOL-BREF)的阿拉伯语版问卷来评估生活质量,并使用扎里特负担访谈问卷来评估所经历的负担程度。参与者通过系统随机抽样方法招募。
结果
共有103名ADHD照料者纳入研究。103名参与者中有89名(86.4%)报告有不同程度的负担。照料者的婚姻状况与负担程度之间存在显著关系(p = 0.024)。离婚的照料者中有4名(57.1%)负担沉重。103名参与者中有90名(87.4%)报告家庭功能失调,其中大多数(60名,60.1%)报告家庭功能中度失调。生活质量的所有领域都受到负面影响,环境领域受到的干扰最大。生活质量的总体四个子领域在不同社会人口学特征方面没有显著差异。
结论
ADHD儿童的照料者中负担和家庭功能失调的患病率很高。婚姻状况对负担程度有显著影响。此外,对生活质量的各个方面都有不利影响,环境领域受影响最大。考虑家庭治疗和其他加强照料者与家庭关系的干预措施很重要。