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癌症防治倡导者与高危女性在集体步行活动中共同开展的癌症预防项目的联合制作、试点及定性评估:并肩同行,边走边谈。

The Co-Production, Pilot and Qualitative Evaluation of a Cancer Prevention Programme With High-Risk Women Delivered on Group Walks by Cancer Champions: Shoulder to Shoulder, Walk and Talk.

作者信息

Hanson Sarah, Hardeman Wendy

机构信息

School of Health Sciences, University of East Anglia, Norwich, UK.

出版信息

Health Expect. 2024 Aug;27(4):e14175. doi: 10.1111/hex.14175.

Abstract

OBJECTIVES

Women in the criminal justice system and women who have been subject to domestic abuse are at high risk of cancer but underrepresented in health promotion research. We aimed to co-produce, pilot and evaluate a health promoting programme delivered on group walks.

DESIGN

A programme co-produced by women, based on motivational interviewing, created the opportunity for supportive conversations about cancer prevention.

METHODS

Programme development in two workshops with women with lived experience using authentic vignettes to prompt help-seeking conversations. A small pilot and a qualitative evaluation was done using framework analysis.

RESULTS

The programme appeared acceptable to women and the walk leaders. Women felt included and found it a safe space for sensitive conversations. They appeared empowered and more confident to seek help. Walk leaders expressed confidence in delivering this informal programme, which used prompts rather than delivering didactic training.

CONCLUSION

Cancer prevention for high-risk groups can be delivered in a personalised and novel way by creating informal opportunities for supportive conversations about cancer prevention. Careful co-production of the programme of walks with women, using scenarios and quotes that were authentic vignettes, ensured that these came directly from the women's lived experience and enabled women to talk about change. Our findings indicate that this approach was practical, relevant and acceptable to them with some evidence of women feeling empowered to make informed decisions about their health. We recommend that future cancer prevention programmes for underrepresented groups take an asset-based approach by utilising pre-existing community organisations to increase reach and sustainability.

PATIENT AND PUBLIC INVOLVEMENT

Women with lived experience co-designed and tested the programme. Provisional findings were fed back to the women and the women's organisation that partnered with this research.

摘要

目标

刑事司法系统中的女性以及遭受家庭虐待的女性患癌症风险很高,但在健康促进研究中的代表性不足。我们旨在共同制作、试点并评估一项通过集体散步开展的健康促进项目。

设计

一项由女性共同制作的项目,基于动机性访谈,为关于癌症预防的支持性对话创造了机会。

方法

通过两个工作坊与有实际经验的女性共同开展项目开发,使用真实案例来引发寻求帮助的对话。采用框架分析法进行了小型试点和定性评估。

结果

该项目似乎为女性和散步领队所接受。女性感到自己被纳入其中,并发现这是一个进行敏感对话的安全空间。她们似乎更有能力且更有信心寻求帮助。散步领队对开展这个非正式项目表示有信心,该项目使用提示而非进行说教式培训。

结论

通过为关于癌症预防的支持性对话创造非正式机会,可以以个性化和新颖的方式为高危人群提供癌症预防服务。与女性仔细共同制作散步项目,使用真实案例的情景和引语,确保这些直接来自女性的实际经历,并使女性能够谈论改变。我们的研究结果表明,这种方法对她们来说是切实可行、相关且可接受的,有一些证据表明女性有能力就自身健康做出明智决策。我们建议,未来针对代表性不足群体的癌症预防项目应采用基于资产的方法,利用现有的社区组织来扩大覆盖面和提高可持续性。

患者和公众参与

有实际经验的女性共同设计并测试了该项目。初步研究结果反馈给了参与本研究的女性及女性组织。

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本文引用的文献

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Understanding and Responding to Health Literacy as a Social Determinant of Health.理解和应对健康素养作为健康的社会决定因素。
Annu Rev Public Health. 2021 Apr 1;42:159-173. doi: 10.1146/annurev-publhealth-090419-102529. Epub 2021 Oct 9.

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