印度唇腭裂儿童照顾者心理健康和生活质量的初步研究。
A pilot study of mental health and quality-of-life of caregivers of children with cleft lip/palate in India.
机构信息
Spandana Rehabilitation Research and Training Centre, Consultant Psychiatrist - Spandana Nursing Home, India.
出版信息
Indian J Psychiatry. 2013 Apr;55(2):167-9. doi: 10.4103/0019-5545.111456.
Abstract
BACKGROUND
There has been insufficient and contradictory research to date on the impacts of caring for a child with cleft lip/palate. Therefore this pilot study sought to investigate the mental health and quality of life of primary caregivers of children with cleft lip/palate.
MATERIALS AND METHODS
Seventy-nine primary caregivers of children with cleft lip/palate awaiting a surgical procedure in India completed questionnaires to measure their mental health, quality of life, and demographic variables.
RESULTS
The results indicated that half of the sample suffered from poor mental health and a reduced quality of life. Overall perceptions of quality of life were significantly associated with the age of the child requiring care and the contact hours per day spent with the child.
CONCLUSION
It is apparent that caregivers for this population do suffer from a reduced quality of life and poorer mental health. This is especially relevant for older caregivers and those with greater caring responsibilities.
摘要
背景
迄今为止，有关照顾唇腭裂儿童的影响的研究还不够充分，也存在矛盾。因此，这项初步研究旨在调查唇腭裂儿童的主要照顾者的心理健康和生活质量。
材料和方法
在印度，79 名等待手术的唇腭裂儿童的主要照顾者完成了问卷，以衡量他们的心理健康、生活质量和人口统计学变量。
结果
结果表明，样本中有一半的人心理健康状况不佳，生活质量下降。整体生活质量的认知与需要照顾的孩子的年龄以及每天与孩子的接触时间显著相关。
结论
显然，这一人群的照顾者的生活质量和心理健康都较差。对于年龄较大的照顾者和承担更多照顾责任的照顾者来说，这一点尤其重要。
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