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流动人群健康研究的参与式行动实验室:与流动人群和政策制定者共同开展研究的挑战。

Living labs for migrant health research: the challenge of cocreating research with migrant population and policy makers.

机构信息

Barcelona Institute for Global Health, Barcelona, Spain.

Hospital Clinic de Barcelona, Barcelona, Spain.

出版信息

BMJ Glob Health. 2024 Aug 28;9(8):e014795. doi: 10.1136/bmjgh-2023-014795.

DOI:10.1136/bmjgh-2023-014795
PMID:39209337
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC11367358/
Abstract

The need for the public to take an active role in scientific research is becoming increasingly important, particularly in health-related research. However, the coexistence and alignment of scientific and citizen interests, needs, knowledge and timing is not straightforward, especially when involving migrant populations. To conduct impactful research, it becomes also essential to consider the perspectives of policymakers, thereby adding a layer of complexity to the processes.In this article we address the experience of a living lab created in a research institution and supported by the city council and a local foundation, in which we developed three experiences of patient and public involvement (PPI): (1) accessing to comprehensive care for people at risk of Chagas disease; (2) strategies towards improving access and quality of mental healthcare services in migrants; (3) promoting healthy and safe school environments in vulnerable urban settings.These three challenges provided an opportunity to delve into diverse strategies for involving key stakeholders, including migrant populations, expert researchers and political actors in health research. This article offers insights into the successes, challenges, and valuable lessons learnt from these endeavours, providing a vision that can be beneficial for future initiatives. Each living lab experience crafted its unique governance system and agenda tailored to specific challenge scenarios, giving rise to diverse methods and study designs.We have found that the management of the cocreation of the research question and the institutional support are key to building robust PPI processes with migrant groups.

摘要

公众积极参与科学研究的需求变得越来越重要,特别是在与健康相关的研究中。然而,科学和公民的利益、需求、知识和时间的共存和协调并不简单,特别是在涉及移民群体时。为了进行有影响力的研究,还必须考虑政策制定者的观点,从而使这些过程更加复杂。

在本文中,我们介绍了在一个研究机构中创建的一个生活实验室的经验,该实验室得到了市议会和当地基金会的支持,我们在其中开展了三种患者和公众参与(PPI)的经验:(1)为有患恰加斯病风险的人提供全面的护理;(2)改善移民获得和改善精神保健服务的质量;(3)在弱势城市环境中促进健康和安全的学校环境。

这三个挑战为我们提供了一个机会,可以深入研究涉及关键利益攸关方的各种策略,包括移民群体、专家研究人员和健康研究中的政治行为者。本文提供了从这些努力中获得的成功、挑战和宝贵经验的见解,为未来的举措提供了有益的视角。每个生活实验室的经验都制定了其独特的治理体系和议程,以适应特定的挑战情况,从而产生了不同的方法和研究设计。

我们发现,共同创造研究问题的管理和机构支持是与移民群体建立强大的 PPI 流程的关键。

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本文引用的文献

1
The multidimensional comprehension of Chagas disease. Contributions, approaches, challenges and opportunities from and beyond the Information, Education and Communication field.对恰加斯病的多维理解。信息、教育和传播领域内外的贡献、方法、挑战和机遇。
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Estimating chagas disease prevalence and number of underdiagnosed, and undertreated individuals in Spain.估算西班牙恰加斯病的患病率以及未得到诊断和治疗的人数。
Travel Med Infect Dis. 2022 May-Jun;47:102284. doi: 10.1016/j.tmaid.2022.102284. Epub 2022 Mar 2.
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Living Lab for Citizens' Wellness: A Case of Maintaining and Improving a Healthy Diet under the COVID-19 Pandemic.
居民健康生活实验室:新冠疫情下维持和改善健康饮食的案例。
Int J Environ Res Public Health. 2022 Jan 23;19(3):1254. doi: 10.3390/ijerph19031254.
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Participatory health research with migrants: Opportunities, challenges, and way forwards.参与式移民健康研究:机遇、挑战与前进方向。
Health Expect. 2021 Apr;24(2):188-197. doi: 10.1111/hex.13201. Epub 2021 Feb 2.
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Air quality around schools: Part I - A comprehensive literature review across high-income countries.学校周边空气质量:第一部分-高收入国家的综合文献综述。
Environ Res. 2021 May;196:110817. doi: 10.1016/j.envres.2021.110817. Epub 2021 Jan 30.
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Comparative evaluation of community interventions for the immigrant population of Latin American origin at risk for Chagas disease in the city of Barcelona.巴塞罗那市针对拉美裔移民中感染恰加斯病高危人群的社区干预措施的比较评估。
PLoS One. 2020 Jul 14;15(7):e0235466. doi: 10.1371/journal.pone.0235466. eCollection 2020.
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Patient and public involvement in research: from tokenistic box ticking to valued team members.患者和公众参与研究:从象征性的勾选到有价值的团队成员。
BMC Med. 2020 Apr 13;18(1):79. doi: 10.1186/s12916-020-01544-7.
8
Living labs for health: an integrative literature review.健康生活实验室:综合文献回顾。
Eur J Public Health. 2020 Feb 1;30(1):55-63. doi: 10.1093/eurpub/ckz105.
9
Ethnic Minority Health in Ireland-Co-creating knowledge (EMH-IC): a participatory health research protocol.爱尔兰少数民族健康——共同创造知识(EMH-IC):一项参与性健康研究方案。
BMJ Open. 2018 Oct 31;8(10):e026335. doi: 10.1136/bmjopen-2018-026335.
10
Patient engagement in Canada: a scoping review of the 'how' and 'what' of patient engagement in health research.加拿大的患者参与:对健康研究中患者参与的“方式”和“内容”的范围综述。
Health Res Policy Syst. 2018 Feb 7;16(1):5. doi: 10.1186/s12961-018-0282-4.