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流动人群健康研究的参与式行动实验室:与流动人群和政策制定者共同开展研究的挑战。

Living labs for migrant health research: the challenge of cocreating research with migrant population and policy makers.

机构信息

Barcelona Institute for Global Health, Barcelona, Spain.

Hospital Clinic de Barcelona, Barcelona, Spain.

出版信息

BMJ Glob Health. 2024 Aug 28;9(8):e014795. doi: 10.1136/bmjgh-2023-014795.

Abstract

The need for the public to take an active role in scientific research is becoming increasingly important, particularly in health-related research. However, the coexistence and alignment of scientific and citizen interests, needs, knowledge and timing is not straightforward, especially when involving migrant populations. To conduct impactful research, it becomes also essential to consider the perspectives of policymakers, thereby adding a layer of complexity to the processes.In this article we address the experience of a living lab created in a research institution and supported by the city council and a local foundation, in which we developed three experiences of patient and public involvement (PPI): (1) accessing to comprehensive care for people at risk of Chagas disease; (2) strategies towards improving access and quality of mental healthcare services in migrants; (3) promoting healthy and safe school environments in vulnerable urban settings.These three challenges provided an opportunity to delve into diverse strategies for involving key stakeholders, including migrant populations, expert researchers and political actors in health research. This article offers insights into the successes, challenges, and valuable lessons learnt from these endeavours, providing a vision that can be beneficial for future initiatives. Each living lab experience crafted its unique governance system and agenda tailored to specific challenge scenarios, giving rise to diverse methods and study designs.We have found that the management of the cocreation of the research question and the institutional support are key to building robust PPI processes with migrant groups.

摘要

公众积极参与科学研究的需求变得越来越重要,特别是在与健康相关的研究中。然而,科学和公民的利益、需求、知识和时间的共存和协调并不简单,特别是在涉及移民群体时。为了进行有影响力的研究,还必须考虑政策制定者的观点,从而使这些过程更加复杂。

在本文中,我们介绍了在一个研究机构中创建的一个生活实验室的经验,该实验室得到了市议会和当地基金会的支持,我们在其中开展了三种患者和公众参与(PPI)的经验:(1)为有患恰加斯病风险的人提供全面的护理;(2)改善移民获得和改善精神保健服务的质量;(3)在弱势城市环境中促进健康和安全的学校环境。

这三个挑战为我们提供了一个机会,可以深入研究涉及关键利益攸关方的各种策略,包括移民群体、专家研究人员和健康研究中的政治行为者。本文提供了从这些努力中获得的成功、挑战和宝贵经验的见解,为未来的举措提供了有益的视角。每个生活实验室的经验都制定了其独特的治理体系和议程,以适应特定的挑战情况,从而产生了不同的方法和研究设计。

我们发现,共同创造研究问题的管理和机构支持是与移民群体建立强大的 PPI 流程的关键。

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