Sommer R, Topp J, Mrowietz U, Zander N, Augustin M
German Center for Health Services Research in Dermatology (CVderm), Institute for Health Services Research in Dermatology and Nursing (IVDP), University Medical Center Hamburg-Eppendorf (UKE), Hamburg, Germany.
Psoriasis-Center at the Department of Dermatology, University Medical Center Schleswig-Holstein, Kiel, Germany.
J Eur Acad Dermatol Venereol. 2020 Dec;34(12):2846-2855. doi: 10.1111/jdv.16436. Epub 2020 Jul 21.
Perception of psoriasis in the general population is characterized by knowledge deficits and prejudice against those affected. The extent and possible predictors of stigmatizing attitudes remain unclear.
The aim was to assess prejudices and stigmatization of people with psoriasis and to identify sociodemographic and attitude-related variables accounting for stigmatization.
Representative telephone surveys of 2004 (in 2017) and 2001 (in 2018) adults using a standardized questionnaire. Descriptive analyses were applied to living area, age, gender, educational status, general knowledge and attitudes about psoriasis. Logistic regression analyses were carried out to determine which variables are associated with the assessment of prejudices of 'others' against people with psoriasis. Those prejudices were specified by the following statements: 'they should take better care of themselves', 'don't want to touch people with psoriasis' and 'disgusted by psoriasis'.
The majority of those surveyed (74%) believe that people with psoriasis are disadvantaged. Similarly, a majority (69%) said that most people find psoriasis disgusting, do not want to touch people with psoriasis (59%) and think that people with psoriasis need to take better care of themselves (45%). 'Willing to enter a relationship with an affected person' (OR = 0.330, P = 0.029), higher age (OR = 1.027, P <0.001) and male gender (OR = 1.263, P = 0.034) proved to be significantly associated with 'psoriasis is disgusting'. Education (OR = 1.648, P = 0.016) and lower age (OR = 0.847, P <0.001) are significantly associated with 'they need to take better care of themselves'.
Data suggest that stigmatization of skin diseases is still entrenched. This overview shows the need for interventions against stigmatization of those affected. Results imply that gender, age and education level and related health literacy of the target groups of respective interventions should be taken into account.
普通人群对银屑病的认知存在知识欠缺以及对患者的偏见。污名化态度的程度及可能的预测因素仍不明确。
旨在评估对银屑病患者的偏见和污名化,并确定导致污名化的社会人口学及态度相关变量。
在2017年和2018年分别对2004名和2001名成年人进行具有代表性的电话调查,使用标准化问卷。对居住地区、年龄、性别、教育程度、对银屑病的常识及态度进行描述性分析。进行逻辑回归分析以确定哪些变量与对“他人”对银屑病患者偏见的评估相关。这些偏见通过以下陈述来明确:“他们应该更好地照顾自己”、“不想接触银屑病患者”以及“对银屑病感到厌恶”。
大多数受访者(74%)认为银屑病患者处于不利地位。同样,大多数人(69%)表示大多数人觉得银屑病令人厌恶,不想接触银屑病患者(59%),并认为银屑病患者需要更好地照顾自己(45%)。“愿意与患者建立恋爱关系”(比值比[OR]=0.330,P=0.029)、年龄较大(OR=1.027,P<0.001)和男性(OR=1.263,P=0.034)被证明与“银屑病令人厌恶”显著相关。教育程度(OR=1.648,P=0.016)和年龄较小(OR=0.847,P<0.001)与“他们需要更好地照顾自己”显著相关。
数据表明对皮肤病的污名化仍然根深蒂固。本综述表明需要采取干预措施来消除对患者的污名化。结果意味着在各自干预措施的目标群体中,应考虑性别、年龄、教育水平及相关健康素养。