Mendon Gurucharan Bhaskar, Gurung Dristy, Loganathan Santosh, Abayneh Sisay, Zhang Wufang, Kohrt Brandon A, Hanlon Charlotte, Lempp Heidi, Thornicroft Graham, Gronholm Petra C
Department of Psychiatric Social Work, National Institute of Mental Health and Neuro Sciences, Bangalore, Karnataka, India.
Health Service and Population Research Department, Centre for Global Mental Health, Institute of Psychiatry Psychology and Neuroscience, King's College London, London, UK.
Glob Ment Health (Camb). 2024 Jun 3;11:e70. doi: 10.1017/gmh.2024.69. eCollection 2024.
Social contact refers to the facilitation of connection and interactions between people with and without mental health conditions. It can be achieved, for example, through people sharing their lived experience of mental health conditions, which is an effective strategy for stigma reduction. Meaningful involvement of people with lived experience (PWLE) in leading and co-leading anti-stigma interventions can/may promote autonomy and resilience. Our paper aimed to explore how PWLE have been involved in research and anti-stigma interventions to improve effective means of involving PWLE in stigma reduction activities in LMICs. A qualitative collective case study design was adopted. Case studies from four LMICs (China, Ethiopia, India and Nepal) are summarized, briefly reflecting on the background of the work, alongside anticipated and experienced challenges, strategies to overcome these, and recommendations for future work. We found that the involvement of PWLEs in stigma reduction is commonly a new concept in LMIC. Experienced and anticipated challenges were similar, such as identifying suitable persons to engage in the work and sustaining their involvement. Such an approach can be difficult because PWLE might be apprehensive about the negative consequences of disclosure. In many case studies, we found that long-standing professional connectedness, continued encouragement, information sharing, debriefing and support helped the participants' involvement. We recommend that confidentiality of the individual, cultural norms and family concerns be prioritized and respected during the implementation. Taking into account socio-cultural contextual factors, it is possible to directly involve PWLEs in social contact-based anti-stigma interventions.
社会接触是指促进有心理健康问题和无心理健康问题的人之间的联系与互动。例如,通过人们分享他们在心理健康问题方面的生活经历就可以实现社会接触,这是减少污名化的有效策略。有生活经历的人(PWLE)有意义地参与主导和共同主导反污名干预措施能够促进自主性和恢复力。我们的论文旨在探讨有生活经历的人如何参与研究和反污名干预措施,以改进在低收入和中等收入国家让有生活经历的人参与减少污名化活动的有效方法。我们采用了定性集体案例研究设计。总结了来自四个低收入和中等收入国家(中国、埃塞俄比亚、印度和尼泊尔)的案例研究,简要反思了工作背景、预期和实际遇到的挑战、克服这些挑战的策略以及对未来工作的建议。我们发现,在低收入和中等收入国家,有生活经历的人参与减少污名化通常是一个新概念。预期和实际遇到的挑战相似,比如确定合适的人参与这项工作并维持他们的参与度。这种方法可能会有困难,因为有生活经历的人可能担心披露信息会带来负面后果。在许多案例研究中,我们发现长期的专业联系、持续的鼓励、信息共享、汇报情况和支持有助于参与者的参与。我们建议在实施过程中优先考虑并尊重个人的保密性、文化规范和家庭关切。考虑到社会文化背景因素,有可能直接让有生活经历的人参与基于社会接触的反污名干预措施。