Wu Dong-Xia, Hu Jing-Xian, Ma Jian-Hong, Chang Ke-Yi, Zhang Yun, Quan Xiao-Li, Han Jia-Ning, Long Hai-Jing, Chen Chen, Zhai Wei, Guo Huan-Huan, Zhang Li-Li, Wang Xiao-Lan
Department of Infection and Immunology, Beijing Youan Hospital, Capital Medical University, Beijing, 100069, People's Republic of China.
Department of Nursing, Beijing Youan Hospital, Capital Medical University, Beijing, 100069, People's Republic of China.
J Multidiscip Healthc. 2024 Sep 7;17:4373-4382. doi: 10.2147/JMDH.S466797. eCollection 2024.
To investigate and analyse the status quo of the self-management of patients living with HIV/AIDS (PLWHA) and its influencing factors and to provide the basis for formulating intervention strategies.
In this cross-sectional study, 300 PLWHA who visited the Infection Center of Beijing Youan Hospital, Capital Medical University between September 2021 and December 2021 were enrolled using the convenience sampling method. Demographic characteristics and disease-related data were collected for each participant. The HIV/AIDS Self-Management Scale was used to evaluate the self-management ability of PLWHA.
A total of 251 male and 49 female PLWHA were included in this study, with an average age of 39.08 ± 12.09 years and an average disease duration of 9.61 ± 37.04 months. Univariate analysis showed that the PLWHA's place of residence, educational level, physical condition, family relations, duration of HIV disease, receipt or not of antiviral therapy and knowledge of disease had an influence on the scores of the HIV Self-Management Scale (all < 0.05). The results of the self-management scores indicated that the total score for self-management was 41.5 ± 6.4 points, with a scoring rate of 69.6%, which was at a medium level. Long-term self-management had the highest scoring rate (12.2 ± 2.5 points), followed by daily health management (22.3 ± 4.3 points), and social support for self-management had the lowest scoring (5.1 ± 0.9 points). Multivariable analysis showed that the self-management ability of PLWHA was related to educational level, duration of disease and family relations ( = 0.67, = 121.7, < 0.05).
The self-management level of patients with AIDS, especially the social support of daily health management and self-management, needs to be further improved. Educational level, duration of disease and family relations are important factors influencing the self-management of PLWHA.
调查分析艾滋病病毒/艾滋病患者(PLWHA)自我管理的现状及其影响因素,为制定干预策略提供依据。
在这项横断面研究中,采用便利抽样法纳入了2021年9月至2021年12月期间到首都医科大学附属北京佑安医院感染中心就诊的300名PLWHA。收集了每位参与者的人口统计学特征和疾病相关数据。采用艾滋病病毒/艾滋病自我管理量表评估PLWHA的自我管理能力。
本研究共纳入251名男性和49名女性PLWHA,平均年龄为39.08±12.09岁,平均病程为9.61±37.04个月。单因素分析显示,PLWHA的居住地、教育水平、身体状况、家庭关系、艾滋病病程、是否接受抗病毒治疗以及疾病知识对艾滋病自我管理量表得分有影响(均P<0.05)。自我管理得分结果显示,自我管理总分为41.5±6.4分,得分率为69.6%,处于中等水平。长期自我管理得分率最高(12.2±2.5分),其次是日常健康管理(22.3±4.3分),自我管理的社会支持得分最低(5.1±0.9分)。多变量分析显示,PLWHA的自我管理能力与教育水平、病程和家庭关系有关(β = 0.67,F = 121.7,P<0.05)。
艾滋病患者的自我管理水平,尤其是日常健康管理和自我管理的社会支持需要进一步提高。教育水平、病程和家庭关系是影响PLWHA自我管理的重要因素。