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迈向危机管理手册:COVID-19 期间临终关怀和姑息治疗团队成员的观点。

Towards a Crisis Management Playbook: Hospice and Palliative Team Members' Views Amid COVID-19.

机构信息

NYU Rory Meyers College of Nursing (D.S.G., D.D., L.T.M., A.A.B.), New York, New York, USA; NYU Hartford Institute of Geriatric Nursing (D.S.G., D.D., L.T.M., A.A.B.), New York, New York, USA.

NYU Rory Meyers College of Nursing (D.S.G., D.D., L.T.M., A.A.B.), New York, New York, USA; NYU Hartford Institute of Geriatric Nursing (D.S.G., D.D., L.T.M., A.A.B.), New York, New York, USA.

出版信息

J Pain Symptom Manage. 2024 Dec;68(6):573-582.e1. doi: 10.1016/j.jpainsymman.2024.09.012. Epub 2024 Sep 18.

Abstract

CONTEXT

The critical role of hospice and palliative care in response to the COVID-19 pandemic is well recognized, but there is limited evidence to guide healthcare leadership through future crises.

OBJECTIVES

Our goal was to support future organizational resilience by exploring hospice and palliative team members' perspectives on crisis leadership during the COVID-19 pandemic in New York City (NYC).

METHODS

This qualitative descriptive study used individual, semi-structured interviews of purposively sampled interdisciplinary team members. Enrollment sites were two large NYC metro hospice care organizations and one outpatient palliative care practice. We asked participants to complete a demographic form and a 45-60 minute interview. We used descriptive statistics and thematic analysis, respectively, for data analysis. We triangulated the data by presenting preliminary study findings to a group of clinicians (n=21) from one of the referring organizations.

RESULTS

Participants (n=30) were professionally diverse (e.g., nurses, physicians, social workers, chaplains, administrators), experienced (mean=17 years; 10 years in hospice), and highly educated (83% ≥ master's degree). About half (n=15) self-identified as white, non-Hispanic, and nearly half (n=13) self-identified as being from a racial/ethnic minoritized group. Two (n=2) did not wish to self-identify. We identified four themes that reflected challenges and adaptive responses to providing care during a crisis: Stay Open and Stay Safe; Act Flexibly; Lead Adaptively; and Create a Culture of Solidarity.

CONCLUSION

While additional work is indicated, findings offer direction for a crisis management playbook to guide leadership in hospice, palliative care, and other healthcare settings in future crises.

摘要

背景

临终关怀和姑息治疗在应对 COVID-19 大流行中的关键作用得到了广泛认可,但几乎没有证据可以指导医疗保健领导层应对未来的危机。

目的

我们的目标是通过探索纽约市(NYC)COVID-19 大流行期间临终关怀和姑息治疗团队成员对危机领导力的看法,为未来的组织恢复力提供支持。

方法

这项定性描述性研究使用了有针对性抽样的跨学科团队成员的个人半结构化访谈。入组地点是两个大型纽约市都会区临终关怀护理组织和一个门诊姑息治疗实践。我们要求参与者填写一份人口统计学表格和一份 45-60 分钟的访谈。我们分别使用描述性统计和主题分析进行数据分析。我们通过向其中一个参考组织的一组临床医生(n=21)展示初步研究结果来对数据进行三角验证。

结果

参与者(n=30)在专业上多样化(例如,护士、医生、社会工作者、牧师、管理人员),经验丰富(平均 17 年;10 年在临终关怀),教育程度高(83%≥硕士学位)。大约一半(n=15)自认为是白人,非西班牙裔,近一半(n=13)自认为来自少数民族群体。有两个人(n=2)不想自我认同。我们确定了四个反映在危机期间提供护理的挑战和适应性反应的主题:保持开放和安全;灵活行动;适应性领导;和创建团结文化。

结论

虽然还需要做更多的工作,但这些发现为制定危机管理手册提供了方向,以指导临终关怀、姑息治疗和其他医疗保健环境在未来的危机中的领导。

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