促进残疾个体全面融入社区参与式干预研究的实用策略。
Practical strategies for promoting full inclusion of individuals with disabilities in community-based participatory intervention research.
机构信息
Oregon Health & Science University, School of Nursing, Portland, OR 97239-2941, USA.
出版信息
Res Nurs Health. 2011 Jun;34(3):253-65. doi: 10.1002/nur.20434. Epub 2011 Apr 6.
Abstract
Community-based participatory research (CBPR) with disability communities is directed toward facilitating full inclusion of individuals with disabilities and disability community organizations in all aspects of the research process. Within the CBPR framework, academic-disability community partners may value and wish to use experimental designs to test interventions. Being aware of and proactively addressing barriers and challenges to inclusion in the areas of human resources, training, productivity, accommodation, and inadequate funding for disability community organizations are critical for success. Some of the strategies discussed in this article for addressing these challenges include creating redundant systems, providing benefits counseling and individualized payment options for employment, designing trainings to be disability friendly, and carefully considering selection of partners in light of available community resources.
摘要
以残疾群体为基础的社区参与式研究（CBPR）旨在促进残疾个体和残疾群体组织在研究过程的各个方面充分融入。在 CBPR 框架内，学术残疾群体合作伙伴可能看重并希望使用实验设计来测试干预措施。了解并积极应对在人力资源、培训、生产力、适应和残疾群体组织资金不足方面的融入障碍和挑战，对于取得成功至关重要。本文讨论的一些应对这些挑战的策略包括创建冗余系统、提供福利咨询和就业的个性化支付选择、设计对残疾友好的培训以及根据可用社区资源仔细考虑合作伙伴的选择。
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本文引用的文献
1
The future and promise of cognitive behavioral therapy: a commentary.认知行为疗法的未来与前景：述评。
Psychiatr Clin North Am. 2010 Sep;33(3):711-27. doi: 10.1016/j.psc.2010.04.003.
2
Patients' preferences within randomised trials: systematic review and patient level meta-analysis.随机试验中患者的偏好：系统评价与患者层面的荟萃分析
BMJ. 2008 Oct 31;337:a1864. doi: 10.1136/bmj.a1864.
3
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Disabil Rehabil. 2009;31(1):14 - 22. doi: 10.1080/09638280802280387.
4
Developing and evaluating complex interventions: the new Medical Research Council guidance.开发与评估复杂干预措施：医学研究理事会新指南
BMJ. 2008 Sep 29;337:a1655. doi: 10.1136/bmj.a1655.
5
A qualitative exploration of alternative strategies for building community health partnerships: collaboration- versus issue-oriented approaches.构建社区健康伙伴关系替代策略的定性探索：协作导向与问题导向方法。
J Urban Health. 2005 Dec;82(4):638-52. doi: 10.1093/jurban/jti120. Epub 2005 Oct 5.
6
Community-based research partnerships: challenges and opportunities.基于社区的研究伙伴关系：挑战与机遇。
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7
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8
Sharing power and knowledge: professional and mental health consumer/survivor researchers working together in a participatory action research project.分享权力与知识：专业人员与心理健康消费者/幸存者研究者在参与式行动研究项目中的合作
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9
Clinical trials in the 21st century: the case for participant-centered research.
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