Sekhar Deepa L, Hoke Alicia M, Khan Marwa, Gordon Patricia L, Conahan Erin K, Kraschnewski Jennifer L
Department of Pediatrics, Penn State College of Medicine, Hershey, PA, USA.
School District of Lancaster, Lancaster, PA, USA.
J Clin Transl Sci. 2024 Sep 10;8(1):e116. doi: 10.1017/cts.2024.567. eCollection 2024.
At least 70% of premature adult deaths result from behaviors starting and reinforced in adolescence. The use of adolescent-centered outcomes and the necessity of creating space for the adolescent voice regarding research that directly impacts them is often overlooked. These omissions result in proposals and solutions that lack consideration of adolescent ingenuity, preferences, and needs. In 2021, Penn State PRO Wellness was awarded a Patient-Centered Outcomes Research Institute Engagement Award with the goal of addressing the gap in the inclusion of adolescents in research focused on teenage health. The resultant Adolescent Health Network (AHN) was developed in partnership with a stakeholder advisory board comprised of adolescents, parents, health researchers, and school staff. The AHN currently consists of 12 schools and 43 adolescents who have completed stakeholder training. For adolescents, the AHN simulates a school club or career enrichment activity with incoming freshmen replacing graduating seniors over time. For health researchers, the AHN provides rapid, easy access to a pool of adolescents with stakeholder training who are available to provide input on various aspects of a study from recruitment plans, to survey tools to dissemination strategies. This manuscript details the development, execution, and data from this novel program.
至少70%的成年人过早死亡是由在青少年时期开始并强化的行为导致的。以青少年为中心的结果的使用以及为青少年在直接影响他们的研究中表达意见创造空间的必要性常常被忽视。这些疏忽导致提案和解决方案缺乏对青少年的创造力、偏好和需求的考虑。2021年,宾夕法尼亚州立大学PRO健康中心获得了患者为中心的结果研究机构参与奖,目标是解决在关注青少年健康的研究中纳入青少年方面的差距。由此产生的青少年健康网络(AHN)是与一个由青少年、家长、健康研究人员和学校工作人员组成的利益相关者咨询委员会合作开发的。AHN目前由12所学校和43名完成了利益相关者培训的青少年组成。对青少年来说,AHN模拟一个学校俱乐部或职业拓展活动,随着时间的推移,新生会取代即将毕业的高年级学生。对健康研究人员来说,AHN提供了快速、便捷的途径,让他们能够接触到一群经过利益相关者培训的青少年,这些青少年可以就研究的各个方面提供意见,从招募计划到调查工具再到传播策略。本手稿详细介绍了这个新项目的开发、实施和数据。