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对“家庭健康项目”中新型数字健康基础设施参与者观点及经验的质性探索,以改善偏远社区的患者护理。

A qualitative exploration of participants' perspectives and experiences of novel digital health infrastructure to enhance patient care in remote communities within the Home Health Project.

作者信息

Kearney Madeleine, Ryan Leona, Coyne Rory, Worlikar Hemendra, McCabe Ian, Doran Jennifer, Carr Peter J, Pinder Jack, Coleman Seán, Connolly Cornelia, Walsh Jane C, O'Keeffe Derek

机构信息

School of Psychology, University of Galway, Galway, Ireland.

Health Innovation Via Engineering Laboratory, University of Galway, Galway, Ireland.

出版信息

PLOS Digit Health. 2024 Nov 1;3(11):e0000600. doi: 10.1371/journal.pdig.0000600. eCollection 2024 Nov.

Abstract

The Home Health Project, set on Clare Island, five kilometres off the Irish Atlantic coast, is a pilot exploration of ways in which various forms of technology can be utilised to improve healthcare for individuals living in isolated communities. The integration of digital health technologies presents enormous potential to revolutionise the accessibility of healthcare systems for those living in remote communities, allowing patient care to function outside of traditional healthcare settings. This study aims to explore the personal experiences and perspectives of participants who are using digital technologies in the delivery of their healthcare as part of the Home Health Project. Individual semi-structured interviews were conducted with nine members of the Clare Island community participating in the Home Health Project. Interviews took place in-person, in June 2023. Interviews were audio-recorded and transcribed verbatim. The data were analysed inductively using reflexive thematic analysis. To identify determinants of engagement with the Home Health Project, the data was then deductively coded to the Theoretical Domains Framework (TDF) and organised into themes. Seven of the possible 14 TDF domains were supported by the interview data as influences on engagement with the Project: Knowledge, Beliefs about capabilities, Optimism, Intentions, Environmental context and resources, Social influences and Emotion. Overall, participants evaluated the Home Health Project as being of high quality which contributed to self-reported increases in health literacy, autonomy, and feeling well supported in having their health concerns addressed. There was some apprehension related to data protection, coupled with a desire for extended training to address aspects of digital illiteracy. Future iterations can capitalise on the findings of this study by refining the technologies to reflect tailored health information, personalised to the individual user.

摘要

家庭健康项目位于爱尔兰大西洋海岸外5公里处的克莱尔岛,是一项试点探索,旨在研究如何利用各种技术形式来改善生活在偏远社区的个人的医疗保健状况。数字健康技术的整合为彻底改变偏远社区居民获得医疗保健系统的方式带来了巨大潜力,使患者护理能够在传统医疗环境之外发挥作用。本研究旨在探索作为家庭健康项目一部分在医疗保健中使用数字技术的参与者的个人经历和观点。对参与家庭健康项目的克莱尔岛社区的九名成员进行了个人半结构化访谈。访谈于2023年6月亲自进行。访谈进行了录音,并逐字转录。使用反思性主题分析对数据进行归纳分析。为了确定参与家庭健康项目的决定因素,然后将数据演绎编码到理论领域框架(TDF)并组织成主题。访谈数据支持了14个可能的TDF领域中的7个对参与该项目的影响:知识、对能力的信念、乐观主义、意图、环境背景和资源、社会影响和情感。总体而言,参与者认为家庭健康项目质量很高,这有助于自我报告的健康素养、自主性的提高,以及在解决健康问题时得到很好的支持。对数据保护存在一些担忧,同时希望提供扩展培训以解决数字文盲方面的问题。未来的迭代可以利用本研究的结果,通过改进技术来反映为个体用户量身定制的健康信息。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/215f/11530050/6d5d78dd128f/pdig.0000600.g001.jpg

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