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糖尿病性视网膜病变和糖尿病性黄斑水肿诊断、治疗及病情进展的患者与医生观点:一篇播客文章

Patient and Physician Perspectives of Diabetic Retinopathy and Diabetic Macular Edema Diagnosis, Treatment and Progression: A Podcast Article.

作者信息

Newman Daniel, Warren Bernadette, Barker Randall, Wykoff Charles C, Vujosevic Stela

机构信息

Patient author, London, UK.

Patient author, Surrey, UK.

出版信息

Ophthalmol Ther. 2025 Jan;14(1):1-12. doi: 10.1007/s40123-024-01053-3. Epub 2024 Nov 6.

Abstract

Diabetic retinopathy (DR) is one of the leading causes of vision loss among people of working age. However, people with diabetes are often unaware of the importance of DR screening for preserving vision, highlighting the importance of patient education about DR and DR-related ocular and systemic comorbidities. In this podcast, three patients with different stages of DR and two ophthalmologists exchanged their views on diagnosis, treatment, and progression of DR and diabetic macular edema. The discussion revealed that DR affects not only the physical aspects of patients' lives but also their mental wellbeing. The challenges of a DR diagnosis can be compounded by communication gaps that exist between patients, physicians, and the pharmaceutical industry. Development of new therapies is currently informed mainly by physician perspectives. However, the large burden of current treatments calls for new therapeutic approaches that meet patients' needs better. The preferred method of treatment administration can differ from patient to patient and the choices between treatments that necessitate repeated visits, monitoring, and at-home care must be discussed. As such, going forward it is crucial to consider both the physician and patient perspectives in shaping the clinical landscape of DR.

摘要

糖尿病视网膜病变(DR)是工作年龄人群视力丧失的主要原因之一。然而,糖尿病患者往往没有意识到DR筛查对于保护视力的重要性,这凸显了对患者进行DR以及与DR相关的眼部和全身合并症教育的重要性。在本期播客中,三名处于不同DR阶段的患者和两位眼科医生就DR和糖尿病性黄斑水肿的诊断、治疗及病情进展交换了意见。讨论表明,DR不仅影响患者生活的身体方面,还影响他们的心理健康。患者、医生和制药行业之间存在的沟通差距可能会使DR诊断的挑战更加复杂。目前新疗法的开发主要基于医生的观点。然而,当前治疗的巨大负担需要更好地满足患者需求的新治疗方法。治疗给药的首选方法可能因人而异,必须讨论那些需要反复就诊、监测和居家护理的治疗方法之间的选择。因此,未来在塑造DR的临床格局时,考虑医生和患者双方的观点至关重要。

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