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照亮希望:推动被忽视的癫痫群体的健康公平

Shining a Light: Advancing Health Equity in Overlooked Epilepsy Communities.

作者信息

Kiriakopoulos Elaine T, García Sosa Rebecca, Blank Leah, Johnson Emily L, Gutierrez Camilo

机构信息

Department of Neurology, Geisel School of Medicine at Dartmouth College, Hanover, NH, USA.

Department of Pediatrics, Division of Neurology, Northwestern Feinberg School of Medicine, Chicago, IL, USA.

出版信息

Epilepsy Curr. 2024 Jun 14:15357597241258081. doi: 10.1177/15357597241258081.

Abstract

Achieving equitable health in epilepsy requires addressing systemic barriers and social determinants of health to ensure that every person with epilepsy has the opportunity to attain their highest level of health. We review the literature on disparities that affect several minoritized groups living with epilepsy. Early solutions with the potential for modeling towards replication for low socioeconomic status population, non-English language preference communities, sexual and gender minorities, and rural and underserved communities with high social determinants of health burden are shared as examples to catalyze stakeholder investment in identifying and addressing health disparities across the spectrum of epilepsy at both the provider and health systems level. Further support for innovative research is needed to better delineate epilepsy prevalence, treatment access, and health outcomes among diverse populations. These data are essential for enabling the development and testing of evidence-based approaches that lessen disparities and support health equity for individuals impacted by epilepsy.

摘要

在癫痫领域实现公平的健康状况,需要消除系统性障碍和健康的社会决定因素,以确保每个癫痫患者都有机会达到其最佳健康水平。我们回顾了有关影响几个受癫痫影响的少数群体差异的文献。作为示例,分享了一些早期解决方案,这些方案有可能为低社会经济地位人群、非英语语言偏好社区、性少数群体和性别少数群体以及健康负担社会决定因素高的农村和服务不足社区建立可复制的模式,以促使利益相关者投资于在提供者和卫生系统层面识别和解决癫痫全范围内的健康差异。需要进一步支持创新研究,以更好地描绘不同人群中的癫痫患病率、治疗可及性和健康结果。这些数据对于开发和测试基于证据的方法至关重要,这些方法可减少差异并支持受癫痫影响个体的健康公平。

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本文引用的文献

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Disparities in the nationwide distribution of epilepsy centers.全国范围内癫痫中心分布的差异。
Epilepsy Behav. 2021 Dec;125:108409. doi: 10.1016/j.yebeh.2021.108409. Epub 2021 Nov 14.

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