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子宫内膜异位症患者自我概念与自我同情的模板主题分析:定性调查回复分析

A Template Thematic Analysis of Self-Concept and Self-Compassion in People Living With Endometriosis: Analysis of Qualitative Survey Responses.

作者信息

Mazalin Kristi, Evans Subhadra, Van Niekerk Leesa

机构信息

College of Health & Medicine, School of Psychological Sciences, University of Tasmania, Hobart, Tasmania, Australia.

Faculty of Health, School of Psychology, Deakin University, Geelong, Victoria, Australia.

出版信息

J Adv Nurs. 2025 Jul;81(7):4216-4227. doi: 10.1111/jan.16645. Epub 2024 Dec 1.

DOI:10.1111/jan.16645
PMID:39618124
Abstract

AIMS

To explore the influence of endometriosis on an individual's self-concept and the potential applicability of self-compassion in addressing alterations to self-concept.

DESIGN

Qualitative deductive template analysis study.

METHODS

Written reflections completed by women (n = 157) with a self-reported diagnosis of endometriosis were reviewed using a deductive template approach to gain an understanding of how people living with endometriosis view themselves in the face of the diagnosis.

RESULTS

Utilising Neff's (2003) definition of self-compassion, a series of themes emerged, with a higher number of reflections noted for each of the negative components of self-compassion (self-judgement, isolation, overidentification). Themes associated with negative changes to self-concept centred around reflections of inadequacy, self-blame, loneliness, withdrawal and avoidance, feeling misunderstood and judged by others, feeling like a burden and emotional suppression and numbing.

CONCLUSIONS

Endometriosis influences three core domains of self-concept for the person (personal, social and physical). These findings indicate that the components of self-compassion therapy may be of relevance for healthcare providers in addressing the alterations to self-concept experience by individuals living with endometriosis.

IMPLICATIONS FOR PATIENT CARE

This study supports the need for access to timely diagnosis and interdisciplinary care to buffer against the negative consequences for self-concept. Nurses and allied healthcare professionals can use these findings to provide compassion-focused care, with an emphasis on self-kindness, common humanity and mindfulness for individuals with endometriosis.

IMPACT

This lived experience research highlights the influence of endometriosis on the personal, social and physical components of self-concept, indicating a critical need to address self-concept as part of endometriosis-related treatment. Alterations to self-concept may emphasise negative perpetuating cognitions and reinforce isolation, suppression of personal needs and self-silencing.

PATIENT OR PUBLIC CONTRIBUTION

No patient or public contribution.

摘要

目的

探讨子宫内膜异位症对个体自我概念的影响,以及自我同情在应对自我概念改变方面的潜在适用性。

设计

定性演绎模板分析研究。

方法

采用演绎模板法对自我报告诊断为子宫内膜异位症的女性(n = 157)所完成的书面反思进行回顾,以了解子宫内膜异位症患者在面对诊断时如何看待自己。

结果

运用内夫(2003年)对自我同情的定义,出现了一系列主题,自我同情的每个消极成分(自我评判、孤立、过度认同)的反思数量更多。与自我概念消极变化相关的主题集中在对不足、自责、孤独、退缩和回避、感觉被他人误解和评判、感觉自己是负担以及情绪抑制和麻木的反思上。

结论

子宫内膜异位症会影响个体自我概念的三个核心领域(个人、社会和身体)。这些发现表明,自我同情疗法的组成部分可能与医疗保健提供者处理子宫内膜异位症患者自我概念体验的改变相关。

对患者护理的启示

本研究支持需要获得及时诊断和跨学科护理,以缓冲对自我概念的负面影响。护士和相关医疗保健专业人员可以利用这些发现,为子宫内膜异位症患者提供以同情为重点的护理,强调自我仁慈、共同人性和正念。

影响

这项生活经历研究突出了子宫内膜异位症对自我概念的个人、社会和身体组成部分的影响,表明迫切需要将自我概念作为子宫内膜异位症相关治疗的一部分来处理。自我概念的改变可能会强化消极的持续认知,并加剧孤立、个人需求的抑制和自我沉默。

患者或公众贡献

无患者或公众贡献。

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本文引用的文献

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A qualitative investigation into the role of illness perceptions in endometriosis-related quality of life.关于疾病认知在子宫内膜异位症相关生活质量中作用的定性研究。
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Body image, self-compassion, and sexual distress in individuals living with endometriosis.
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"My body…tends to betray me sometimes": a Qualitative Analysis of Affective and Perceptual Body Image in Individuals Living with Endometriosis.“我的身体……有时会背叛我”:子宫内膜异位症患者情感和感知身体意象的定性分析。
Int J Behav Med. 2023 Aug;30(4):543-554. doi: 10.1007/s12529-022-10118-1. Epub 2022 Sep 8.
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Body Image Among Sexual and Gender Minorities: An Intersectional Analysis.性少数群体和性别少数群体的身体意象:交叉分析。
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Lessons from implementing the Australian National Action Plan for Endometriosis.澳大利亚子宫内膜异位症国家行动计划实施的经验教训。
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Hum Reprod. 2022 Jan 28;37(2):264-273. doi: 10.1093/humrep/deab257.
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Challenges of and possible solutions for living with endometriosis: a qualitative study.内异症患者生活面临的挑战及可能的解决办法:定性研究。
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