Prictor Megan, Elwyn Glyn, Hyatt Amelia
Melbourne Law School, The University of Melbourne, Carlton, Australia.
The Dartmouth Institute for Health Policy & Clinical Practice, NH, USA.
PEC Innov. 2024 Nov 8;5:100355. doi: 10.1016/j.pecinn.2024.100355. eCollection 2024 Dec 15.
Recording important healthcare consultations can benefit patients. Technological developments enable recordings by patients and health professionals, as well as real-time 'listening' by AI scribes. Not enough is known about whether and why patients record their consultations.
To investigate people's experiences and preferences regarding consultation recording in Australia.
A 21-item online survey available for all Australians aged 18+ was distributed via social media and professional networks in 2022. Items explored recording behaviour (past and planned), and reasons for recording and sharing. Quantitative data were analysed descriptively; qualitative content analysis was used to analyse open-text items.
A total of 486 responses were received, of which 236 responses were analysed. Of these, 26 % had openly recorded a healthcare consultation, and 15 % had recorded covertly. The majority (71 %) of participants would consider recording a visit and would like their clinic to allow this (56 %). Participants strongly opposed the idea of sharing a recording on social media (84 %). Open-text responses indicated participants valued the health professional's consent, and protecting their own privacy by not oversharing recordings.
Recording of consultations in Australia is common, usually to enhance patients' knowledge, understanding, and participation in their care. Patients value the possibility of recording, especially when they are experiencing vulnerability. Recording can help people navigate the impacts of disability and barriers to information access. Privacy and fairness remain paramount.
This is the first survey of recording practices in Australia and is highly-relevant given recent technological developments. The findings indicate that changes in policy, law and technologies themselves are needed, to clarify parties' rights and responsibilities and to ensure the benefits of consultation recording are realised.
记录重要的医疗咨询对患者有益。技术发展使患者和医疗专业人员能够进行记录，同时人工智能抄写员也能进行实时“聆听”。但对于患者是否以及为何记录他们的咨询，我们所知甚少。
调查澳大利亚人在咨询记录方面的经历和偏好。
2022年通过社交媒体和专业网络向所有18岁及以上的澳大利亚人发放了一份包含21个项目的在线调查问卷。这些项目探讨了记录行为（过去和计划中的）以及记录和分享的原因。对定量数据进行描述性分析；使用定性内容分析法分析开放式文本项目。
共收到486份回复，其中236份回复进行了分析。在这些回复中，26%的人曾公开记录过医疗咨询，15%的人曾秘密记录。大多数参与者（71%）会考虑记录就诊过程，并希望他们的诊所允许这样做（56%）。参与者强烈反对在社交媒体上分享记录的想法（84%）。开放式文本回复表明，参与者重视医疗专业人员的同意，并通过不过度分享记录来保护自己的隐私。
在澳大利亚，记录咨询很常见，通常是为了增强患者对自身护理的了解、理解和参与度。患者重视记录的可能性，尤其是在他们处于弱势的时候。记录可以帮助人们应对残疾带来的影响以及信息获取的障碍。隐私和公平仍然至关重要。
这是澳大利亚首次对记录做法进行的调查，鉴于最近的技术发展，具有高度相关性。研究结果表明，需要在政策、法律和技术本身方面做出改变，以明确各方的权利和责任，并确保实现咨询记录的益处。
