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1型糖尿病青少年自我管理教育项目的经验:一项定性研究。

Experience with a Self-Management Education Program for Adolescents with Type 1 Diabetes: A Qualitative Study.

作者信息

Flora Marília Costa, Barros Luísa, Malheiro Maria Isabel Dias da Costa

机构信息

Nursing Research, Innovation and Development Centre of Lisbon (CIDNUR), University of Lisbon, Nursing School of Lisbon, 1600-190 Lisbon, Portugal.

Department of Child and Adolescent Nursing, Nursing School of Coimbra (ESEnfC), 3004-011 Coimbra, Portugal.

出版信息

Nurs Rep. 2025 Jan 14;15(1):22. doi: 10.3390/nursrep15010022.

Abstract

: Adolescents with type 1 diabetes face complex challenges associated with the disease, underscoring the importance of developing self-management skills. This study examined participants' perspectives on a type 1 diabetes self-management education program. : Focus group interviews were conducted with 32 adolescents with type 1 diabetes who participated in the program and six expert patients. Both thematic analysis and content analysis were conducted using NVIVO software, version 1.6.1. : Two dimensions emerged: expert patient roles and program evaluation. Expert patient roles were viewed positively, with an emphasis on responsibility, sharing experiences, and being a role model. Program evaluation emphasized peer-to-peer sharing and educational sessions, with increased knowledge of the disease and management strategies. Expert patients also benefited from the program by developing a sense of responsibility, serving as role models for adolescents, and improving their disease self-management. : The adolescents emphasized that the program was a learning tool and the expert patient's view of their role emerges, highlighting modelling as a facilitator of learning and of the responsibility and commitment of the mentors. This study reinforces the benefits of peer-to-peer interaction in a camp setting, including rich experiences.

摘要

1型糖尿病青少年面临与该疾病相关的复杂挑战,这凸显了培养自我管理技能的重要性。本研究考察了参与者对一项1型糖尿病自我管理教育项目的看法。:对32名参与该项目的1型糖尿病青少年和6名专家患者进行了焦点小组访谈。使用NVIVO 1.6.1版软件进行了主题分析和内容分析。:出现了两个维度:专家患者角色和项目评估。专家患者角色受到积极看待,强调责任、分享经验和成为榜样。项目评估强调同伴间分享和教育课程,增加了对疾病和管理策略的了解。专家患者也从该项目中受益,培养了责任感,成为青少年的榜样,并改善了他们的疾病自我管理。:青少年强调该项目是一种学习工具,专家患者对其角色的看法显现出来,突出了榜样作为学习促进者以及导师的责任和承诺的作用。本研究强化了在营地环境中同伴间互动的益处,包括丰富的体验。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/0f1b/11767525/429704ab4f94/nursrep-15-00022-g002.jpg

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