Flora Marília Costa, Barros Luísa, Malheiro Maria Isabel Dias da Costa
Nursing Research, Innovation and Development Centre of Lisbon (CIDNUR), University of Lisbon, Nursing School of Lisbon, 1600-190 Lisbon, Portugal.
Department of Child and Adolescent Nursing, Nursing School of Coimbra (ESEnfC), 3004-011 Coimbra, Portugal.
Nurs Rep. 2025 Jan 14;15(1):22. doi: 10.3390/nursrep15010022.
: Adolescents with type 1 diabetes face complex challenges associated with the disease, underscoring the importance of developing self-management skills. This study examined participants' perspectives on a type 1 diabetes self-management education program. : Focus group interviews were conducted with 32 adolescents with type 1 diabetes who participated in the program and six expert patients. Both thematic analysis and content analysis were conducted using NVIVO software, version 1.6.1. : Two dimensions emerged: expert patient roles and program evaluation. Expert patient roles were viewed positively, with an emphasis on responsibility, sharing experiences, and being a role model. Program evaluation emphasized peer-to-peer sharing and educational sessions, with increased knowledge of the disease and management strategies. Expert patients also benefited from the program by developing a sense of responsibility, serving as role models for adolescents, and improving their disease self-management. : The adolescents emphasized that the program was a learning tool and the expert patient's view of their role emerges, highlighting modelling as a facilitator of learning and of the responsibility and commitment of the mentors. This study reinforces the benefits of peer-to-peer interaction in a camp setting, including rich experiences.
1型糖尿病青少年面临与该疾病相关的复杂挑战,这凸显了培养自我管理技能的重要性。本研究考察了参与者对一项1型糖尿病自我管理教育项目的看法。:对32名参与该项目的1型糖尿病青少年和6名专家患者进行了焦点小组访谈。使用NVIVO 1.6.1版软件进行了主题分析和内容分析。:出现了两个维度:专家患者角色和项目评估。专家患者角色受到积极看待,强调责任、分享经验和成为榜样。项目评估强调同伴间分享和教育课程,增加了对疾病和管理策略的了解。专家患者也从该项目中受益,培养了责任感,成为青少年的榜样,并改善了他们的疾病自我管理。:青少年强调该项目是一种学习工具,专家患者对其角色的看法显现出来,突出了榜样作为学习促进者以及导师的责任和承诺的作用。本研究强化了在营地环境中同伴间互动的益处,包括丰富的体验。