Briant Katherine J, Adsul Prajakta, Carosso Elizabeth A, Chakoian Marty, Mapes Diane, Coutee Terri, Hempstead Bridgette, Hassell Laurie, Law Wendy, Mendoza Jason A
Fred Hutch/University of Washington/Seattle Children's Cancer Consortium, Seattle, WA, USA.
Department of Internal Medicine, School of Medicine, University of New Mexico and Cancer Control and Population Sciences Research Program, University of New Mexico Comprehensive Cancer Center, Albuquerque, NM, USA.
J Clin Transl Sci. 2025 Feb 12;9(1):e72. doi: 10.1017/cts.2025.27. eCollection 2025.
The Fred Hutch/University of Washington/Seattle Children's Cancer Consortium's (Consortium) Office of Community Outreach & Engagement (OCOE) joined Stanford Medicine and Morehouse School of Medicine in implementing Engage for Equity Plus (E2PLUS), a multi-institutional community of practice to learn and share patient-centered and community-engaged research (P/CEnR) practices. University of New Mexico (UNM) facilitated this collaboration.
The Consortium formed a Champion Team of 12 people who participated in two virtual workshops facilitated by UNM. Consortium executive leadership ( = 4) participated in interviews, and investigators ( = 4) and community members/patient advocates ( = 8) participated in focus groups to provide institutional context regarding P/CEnR. This is a paper on the process and findings.
Through E2PLUS engagement, the Champion Team identified four strategies to address institutional health inequities: 1) increase participation of underrepresented groups at all levels of institutional leadership and advisory boards; 2) create an Office of Patient Engagement to train and support patients who participate in institutional initiatives and advise research teams; 3) expand community engagement training, resources, and institutional commitment to focus on community-identified social and health needs; and 4) establish an umbrella entity for health equity efforts across the Consortium.
While the Consortium had longstanding community advisory boards and faculty and staff with P/CEnR expertise, it did not have centralized and institutionally supported P/CEnR resources, policies, and infrastructure. By participating in E2PLUS, the Champion Team received technical assistance to leverage qualitative data to influence strategies to guide the development of Consortium health equity infrastructure and capacity for P/CEnR in Washington.
弗雷德·哈钦森癌症研究中心/华盛顿大学/西雅图儿童医院癌症联盟（联盟）的社区外展与参与办公室（OCOE）与斯坦福大学医学院和莫尔豪斯医学院合作，实施了“公平参与升级版”（E2PLUS）项目，这是一个多机构实践社区，旨在学习和分享以患者为中心和社区参与的研究（P/CEnR）实践。新墨西哥大学（UNM）促成了此次合作。
联盟组建了一个由12人组成的冠军团队，他们参加了由新墨西哥大学举办的两次虚拟研讨会。联盟的行政领导（n = 4）参与了访谈，研究人员（n = 4）和社区成员/患者倡导者（n = 8）参与了焦点小组讨论，以提供关于P/CEnR的机构背景信息。本文介绍了该过程及研究结果。
通过参与E2PLUS项目，冠军团队确定了四种解决机构健康不平等问题的策略：1）增加代表性不足群体在机构各级领导和咨询委员会中的参与度；2）设立患者参与办公室，培训和支持参与机构倡议的患者，并为研究团队提供建议；3）扩大社区参与培训、资源以及机构投入，以关注社区确定的社会和健康需求；4）为联盟内的健康公平工作设立一个总体实体。
虽然联盟长期设有社区咨询委员会，且有具备P/CEnR专业知识的教职员工，但缺乏集中且得到机构支持的P/CEnR资源、政策和基础设施。通过参与E2PLUS项目，冠军团队获得了技术援助，以利用定性数据来影响策略，从而指导联盟健康公平基础设施的发展以及华盛顿州P/CEnR的能力建设。
