验证 caregiverqol 工具的匈牙利语版本在非专业照护者中的有效性：来自匈牙利普通人群横断面调查的结果。
Validation of the Hungarian version of the CarerQol instrument in informal caregivers: results from a cross-sectional survey among the general population in Hungary.
机构信息
Department of Health Economics, Corvinus University of Budapest, Fővám tér 8, Budapest, 1093, Hungary.
Erasmus School of Health Policy & Management (ESHPM), Erasmus University Rotterdam, PO Box 1738, 3000 DR, Rotterdam, The Netherlands.
出版信息
Qual Life Res. 2021 Feb;30(2):629-641. doi: 10.1007/s11136-020-02662-8. Epub 2020 Oct 10.
PURPOSE
The CarerQol instrument has been designed and validated as an instrument able to measure both the positive and the negative impacts of caregiving on the quality of life of informal caregivers (CarerQol-7D), as well as their general happiness (CarerQol-VAS). The aim of this study was to assess the construct validity of the CarerQol in the Hungarian context.
METHODS
The CarerQol was translated into Hungarian. Subsequently, in a cross-sectional online survey, representative for the general Hungarian population (N = 1000), informal caregivers were identified (N = 149, female 51.2%, mean age 53.2). Clinical, convergent and discriminant validity of the CarerQol were evaluated in relation to the caregivers' and care recipients' EQ-5D-5L health status, and caregiving situation characteristics.
RESULTS
Average CarerQol-7D and CarerQol-VAS scores were 76.0 (SD 16.2) and 6.8 (SD 2.3), respectively. CarerQol-7D and CarerQol-VAS scores were significantly correlated with caregiving time (r = - 0.257; - 0.212), caregivers' EQ-5D-5L scores (r = 0.453; 0.326) and the CarerQol-7D also with care recipients' EQ-5D-5L scores (r = 0.247). CarerQol-7D scores differed significantly with relevant caregiving characteristics (e.g. nature and severity of care recipients' health status, sharing household) and both the CarerQol-7D and CarerQol-VAS with the overall care experience.
CONCLUSION
Our findings confirmed the validity of the Hungarian language version of the CarerQol and support the cross-cultural validity of the instrument. CarerQol-7D scores performed better in distinguishing caregiving situation characteristics than the general happiness measure CarerQol-VAS. Care recipients' health status was only weakly associated with informal caregivers' care-related quality of life and happiness. Caregivers' own health and caregiving circumstances were more strongly associated with these scores.
目的
CareerQol 工具旨在测量非正式照护者的生活质量受到照护的积极和消极影响（CareerQol-7D），以及他们的总体幸福感（CareerQol-VAS）。本研究旨在评估 CareerQol 在匈牙利背景下的结构效度。
方法
CareerQol 被翻译为匈牙利语。随后，在一项具有代表性的横断面在线调查中，确定了一般匈牙利人群中的非正式照护者（N=1000，女性占 51.2%，平均年龄 53.2 岁）（N=149）。在与照护者和照护对象的 EQ-5D-5L 健康状况和照护情况特征相关的情况下，评估了 CareerQol 的临床、收敛和判别效度。
结果
平均 CareerQol-7D 和 CareerQol-VAS 得分分别为 76.0（16.2）和 6.8（2.3）。CareerQol-7D 和 CareerQol-VAS 评分与照护时间（r=-0.257；-0.212）、照护者的 EQ-5D-5L 评分（r=0.453；0.326）显著相关，CareerQol-7D 还与照护对象的 EQ-5D-5L 评分（r=0.247）相关。CareerQol-7D 评分与相关照护特征（例如照护对象健康状况的性质和严重程度、家庭共享）差异显著，且 CareerQol-7D 和 CareerQol-VAS 评分均与总体照护体验有关。
结论
我们的研究结果证实了匈牙利语版 CareerQol 的有效性，并支持该工具的跨文化有效性。在区分照护情况特征方面，CareerQol-7D 评分优于总体幸福感量表 CareerQol-VAS。照护对象的健康状况仅与非正式照护者的照护相关生活质量和幸福感呈弱相关。照护者自身的健康和照护情况与这些评分的相关性更强。
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