Zhang E, Punt Stephanie, Nary Dot, Summers Jean Ann
Department of Occupational Therapy Education, University of Kansas Medical Center, Kanas City, KS, 66160, USA.
Research and Training Center On Independent Living, University of Kansas, Lawrence, KS, 66045, USA.
Prev Sci. 2025 Jun 3. doi: 10.1007/s11121-025-01820-z.
People with physical disabilities experience higher rates of secondary health conditions and often have difficulty accessing healthcare and other resources to manage these conditions compared to the general population. Centers for Independent Living (CIL), community-based, non-profit, non-residential centers, are uniquely poised to facilitate the health promotion of individuals with disabilities. This project aimed to develop and provide an 8-week structured and individualized program for CIL staff to facilitate the management of secondary health conditions through setting and pursuing SMART goals with adult consumers with physical disabilities. Researchers developed and pilot-tested the Health Access for Independent Living (HAIL) program in consultation with CILs and designed it to fit within the existing CIL service delivery system. The HAIL program was developed and piloted sequentially with two cohorts of 12 CIL staff members and 23 consumers with physical disabilities in Kansas and Pennsylvania communities. The HAIL program helped 82.3% of participants achieve their health goals at their expected level and led to fewer perceived barriers to managing their health. The HAIL program provided a structured program for CIL staff to assist adult consumers with physical disabilities in managing their health and fit well into the CIL service delivery system.
与普通人群相比，身体残疾者出现继发性健康问题的几率更高，而且在获取医疗保健及其他管理这些健康问题的资源方面往往存在困难。独立生活中心（CIL）是设在社区的非营利性非住宿中心，在促进残疾人士的健康方面具有独特的优势。该项目旨在为CIL工作人员开发并提供一个为期8周的结构化个性化项目，通过与成年身体残疾消费者设定并追求明确、可衡量、可实现、相关联、有时限的（SMART）目标，来促进对继发性健康问题的管理。研究人员与CIL协商制定并对独立生活健康获取（HAIL）项目进行了试点测试，并将其设计为适合现有的CIL服务提供系统。HAIL项目是与堪萨斯州和宾夕法尼亚州社区的两批各12名CIL工作人员以及23名身体残疾消费者依次开展并进行试点的。HAIL项目帮助82.3%的参与者在预期水平上实现了他们的健康目标，并减少了在管理自身健康方面感知到的障碍。HAIL项目为CIL工作人员提供了一个结构化项目，以协助成年身体残疾消费者管理他们的健康，并很好地融入CIL服务提供系统。
