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对可存活期(22周0天至23周6天)咨询实践及采用创伤知情护理方法的必要性的快速回顾。

A rapid review of periviable (22 + 0 to 23 + 6 weeks) counselling practices and the need for a trauma-informed care approach.

作者信息

Peterson J, Graham C, Johnstone E D, Mahaveer A, Smith D M

机构信息

Faculty of Biology, Medicine and Health Sciences, University of Manchester, Manchester, United Kingdom.

Neonatal Intensive Care Unit, St Mary's Maternity Hospital, Manchester Foundation Trust, Manchester, United Kingdom.

出版信息

Front Pediatr. 2025 May 22;13:1553040. doi: 10.3389/fped.2025.1553040. eCollection 2025.

Abstract

Given the risks of mortality and morbidity for infants born in the periviable period, a decision is made between parents and professionals prior to the birth as to whether survival-focused or comfort care is most appropriate at delivery. Medical information should be shared with parents and parental perspectives and priorities in relation to this information should be explored and integrated into the decision-making process. Conducting these conversations is complex and nuanced. This rapid review conducted a systematic search of the available literature relating to the approaches to and content of the pre-birth periviable conversation and identified three core themes: Transparency, Collaboration and Empowerment. In brief, these themes demonstrate that the information provided to parents should consistently outline all available care options relevant to their baby, including compassionately delivered, but honest and descriptive accounts of emotive options, such as comfort care. Information should be individualised to the specific circumstances and risk factors of that individual family. Perinatal professionals should seek to incorporate discussion of topics key to the 'good parent belief' to empower parents within their role. Avoiding or omitting discussion of uncertainty and dismissal of hope within these conversations was associated with parental distrust and impaired communication. The themes identified within this rapid review align with the principles of trauma-informed care and provide a structure for further research and service development focused on improving the quality and experience of pre-birth periviable conversations for future parents. : https://www.crd.york.ac.uk/PROSPERO/view/CRD42022300099, PROSPERO identifier CRD4202230009.

摘要

鉴于在可存活期出生的婴儿存在死亡和发病风险,在出生前,父母和专业人员需要就分娩时以生存为重点的护理还是舒适护理最为合适做出决定。应与父母分享医疗信息,并探讨父母对此信息的看法和优先事项,并将其纳入决策过程。进行这些对话既复杂又微妙。本快速综述对与出生前可存活期对话的方法和内容相关的现有文献进行了系统检索,确定了三个核心主题:透明度、协作和赋权。简而言之,这些主题表明,提供给父母的信息应始终概述与其婴儿相关的所有可用护理选项,包括以同情方式提供但对情感选项(如舒适护理)诚实且具描述性的说明。信息应根据每个家庭的具体情况和风险因素进行个性化定制。围产期专业人员应寻求纳入对 “好父母信念” 关键主题的讨论,以增强父母在其角色中的能力。在这些对话中避免或省略对不确定性的讨论以及摒弃希望与父母的不信任和沟通障碍有关。本快速综述中确定的主题与创伤知情护理原则一致,并为进一步的研究和服务发展提供了一个框架,重点是改善未来父母出生前可存活期对话的质量和体验。: https://www.crd.york.ac.uk/PROSPERO/view/CRD42022300099,PROSPERO标识符CRD4202230009

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/431d/12137106/3e2eb907ec26/fped-13-1553040-g001.jpg

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