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一款用于颈部肌张力障碍居家症状监测的智能手机应用程序的可用性与依从性评估

Usability and adherence evaluation of a smartphone app for home-based symptom monitoring of cervical dystonia.

作者信息

Schulze Rica, Stenger Roland, Loens Sebastian, Baeumer Tobias, Fudickar Sebastian

机构信息

Institute of Medical Informatics, University of Luebeck, Luebeck, Germany.

Institute of Systems Motor Science, University of Luebeck, Luebeck, Germany.

出版信息

Digit Health. 2025 Jun 6;11:20552076251344515. doi: 10.1177/20552076251344515. eCollection 2025 Jan-Dec.

Abstract

BACKGROUND

Cervical dystonia (CD) is a movement disorder that is characterized by involuntary muscle contractions causing abnormal head postures. Current assessments rely primarily on infrequent clinical evaluations and subjective patient-reported outcomes (about every 3 to 4 months), limiting detailed understanding of symptom progression between treatments.

OBJECTIVE

Improved understanding of symptom progression would enhance personalized treatment with Botulinum toxin A therapy. For this purpose, we introduce Move2Screen, a smartphone application designed for frequent home-based, asynchronous video monitoring of symptom progression for CD patients. We evaluate the usability and adherence of Move2Screen.

METHODS

Adherence was assessed in a longitudinal home-based observational study involving eight from initially 11 patients with CD who continued participation after the initial on-site acquisition. Usability was measured using the German mHealth App Usability Questionnaire (G-MAUQ) after the two-week mark, which evaluates ease-of-use, interface satisfaction, and usefulness. Adherence was analyzed by tracking the frequency and timing of recorded videos.

RESULTS

The app showed good overall usability scores on the G-MAUQ and a high adherence rate, with participants completing 74% of the intended video recordings. However, usability evaluations highlighted some challenges in perceived usefulness and minor technical issues reported by users.

CONCLUSION

The Move2Screen app demonstrates promising usability and adherence for home-based symptom monitoring in CD. However, addressing technical limitations, expanding participant cohorts, and integrating clinical decision support are essential next steps. These developments may enhance individualized care by enabling more informed therapeutic adjustments and improving long-term disease management.

摘要

背景

颈部肌张力障碍(CD)是一种运动障碍,其特征是肌肉不自主收缩导致头部姿势异常。目前的评估主要依赖于不频繁的临床评估和患者主观报告的结果(大约每3至4个月一次),这限制了对治疗期间症状进展的详细了解。

目的

更好地了解症状进展将有助于肉毒杆菌毒素A疗法的个性化治疗。为此,我们推出了Move2Screen,这是一款智能手机应用程序,旨在对CD患者的症状进展进行频繁的家庭式异步视频监测。我们评估了Move2Screen的可用性和依从性。

方法

在一项纵向家庭观察研究中评估依从性,该研究最初有11名CD患者,其中8名在首次现场采集后继续参与。在两周后使用德国移动健康应用程序可用性问卷(G-MAUQ)测量可用性,该问卷评估易用性、界面满意度和有用性。通过跟踪录制视频的频率和时间来分析依从性。

结果

该应用程序在G-MAUQ上显示出良好的总体可用性得分和高依从率,参与者完成了74%的预期视频录制。然而,可用性评估突出了用户在感知有用性方面的一些挑战以及报告的一些小技术问题。

结论

Move2Screen应用程序在CD家庭症状监测方面显示出有前景的可用性和依从性。然而,解决技术限制、扩大参与者队列以及整合临床决策支持是接下来的关键步骤。这些进展可能通过实现更明智的治疗调整和改善长期疾病管理来加强个性化护理。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/8037/12144388/9ca42d18ca23/10.1177_20552076251344515-fig1.jpg

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