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一个持续的过程:随着时间推移对重度智力残疾和多重残疾人士实施干预措施。

An Ongoing Process: The Implementation of an Intervention for People With Profound Intellectual and Multiple Disabilities Over Time.

作者信息

Schaafsma Josien, Ten Brug Annet, van der Putten Annette

机构信息

Faculty of Behavioural and Social Sciences, Department of Pedagogy and Educational Sciences, Basic Unit of Inclusive and Special Needs Education, University of Groningen, Groningen, the Netherlands.

出版信息

J Appl Res Intellect Disabil. 2025 Jul;38(4):e70098. doi: 10.1111/jar.70098.

DOI:10.1111/jar.70098
PMID:40667724
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12265036/
Abstract

INTRODUCTION

The "Programma Perspectief" intervention aims to provide optimal support to people with profound intellectual and multiple disabilities. Knowledge concerning intervention fidelity is outdated and scarce as is typical for the support of persons with special needs.

METHODS

An survey amongst care professionals (n = 62) yielded data on the application of core elements of the intervention (vision, methodical approach, and collaboration) in practise, as well as on implementation barriers and facilitators.

RESULTS

Vision and methodical approach are reflected in practise. A positive association was found between the number of perceived barriers and time since implementation. Over time, more barriers emerged at organisational level.

CONCLUSIONS

The results reveal the importance of attending to implementation, even after years. Further research should focus on developing focused implementation strategies to enhance the sustainability of the analysed intervention, thereby guaranteeing the quality of support provided to people with profound intellectual and multiple disabilities.

摘要

引言

“Perspectief计划”干预旨在为重度智力和多重残疾人士提供最佳支持。与干预保真度相关的知识陈旧且匮乏,这在特殊需求人群的支持方面很常见。

方法

对护理专业人员(n = 62)进行的一项调查得出了关于干预核心要素(愿景、方法和协作)在实践中的应用数据,以及实施障碍和促进因素的数据。

结果

愿景和方法在实践中得到体现。发现感知到的障碍数量与实施后的时间之间存在正相关。随着时间的推移,组织层面出现了更多障碍。

结论

结果表明即使在数年之后关注实施也很重要。进一步的研究应侧重于制定有针对性的实施策略,以提高所分析干预措施的可持续性,从而确保为重度智力和多重残疾人士提供的支持质量。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/bcd5/12265036/cfd3d9b23a3a/JAR-38-e70098-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/bcd5/12265036/cfd3d9b23a3a/JAR-38-e70098-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/bcd5/12265036/cfd3d9b23a3a/JAR-38-e70098-g001.jpg

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本文引用的文献

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Reducing restrictive measures in complex long-term care for people with intellectual disabilities: Implementation interventions through the lens of normalisation process theory.减少对智障人士复杂长期护理中的限制性措施:基于正常化过程理论视角的实施干预措施
J Intellect Dev Disabil. 2022 Dec;47(4):353-364. doi: 10.3109/13668250.2022.2044270. Epub 2022 Mar 15.
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Communities of practice for implementing methods to reduce involuntary care in intellectual disability care: Insights from tacit and experiential knowledge exchange.实施减少智力残疾护理中非自愿护理方法的实践社区:隐性和经验性知识交流的见解。
J Intellect Dev Disabil. 2024 Sep;49(3):286-297. doi: 10.3109/13668250.2023.2275225. Epub 2023 Dec 10.
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Parents' tacit knowledge of their child with profound intellectual and multiple disabilities: A qualitative study.
父母对其重度智力和多重残疾子女的隐性知识:一项定性研究。
J Intellect Dev Disabil. 2024 Dec;49(4):415-424. doi: 10.3109/13668250.2024.2336084. Epub 2024 Apr 23.
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The needs of family members of people with severe or profound intellectual disabilities when collaborating with healthcare professionals: a systematic review.重度或极重度智力残疾者的家庭成员在与医疗保健专业人员合作时的需求:一项系统综述。
J Intellect Disabil Res. 2025 Jan;69(1):1-29. doi: 10.1111/jir.13199. Epub 2024 Nov 21.
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A Scoping Review of Outcomes Measured and Involvement of People With Intellectual Disabilities in Active Support Research.一项关于积极支持研究中测量结果和智力残疾人士参与情况的范围综述。
J Appl Res Intellect Disabil. 2024 Nov;37(6):e13309. doi: 10.1111/jar.13309.
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Built to last? Barriers and facilitators of healthcare program sustainability: a systematic integrative review.经久不衰?医疗保健计划可持续性的障碍和促进因素:系统综合评价。
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