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增强电子健康记录中健康数据的上传——隐私信息的框架和长度的作用:德国的一项调查研究

Enhancing uploads of health data in the electronic health record-The role of framing and length of privacy information: A survey study in Germany.

作者信息

von Kalckreuth Niklas, Feufel Markus A

机构信息

Division of Ergonomics, Department of Psychology and Ergonomics (IPA), Technische Universität Berlin, Berlin, Germany.

出版信息

Digit Health. 2025 Jul 31;11:20552076251351197. doi: 10.1177/20552076251351197. eCollection 2025 Jan-Dec.

DOI:10.1177/20552076251351197
PMID:40755954
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC12317265/
Abstract

BACKGROUND

The German electronic health record (EHR) aims to enhance patient care and reduce costs, but users often worry about data security. In this article, we propose and test communication strategies to mitigate privacy concerns and increase EHR uploads.

OBJECTIVE

We explore whether presenting a privacy fact sheet (PFS) before users must decide whether to upload medical reports in the EHR increases their willingness to do so. Our study examines the effects of framing and length of PFS on this decision.

METHODS

In an online user study with 227 German participants, we used a realistic EHR click dummy and varied the PFS in terms of length (short vs. long) and framing (EHR-centered vs. patient-centered).

RESULTS

The results show that a PFS has a positive effect on uploading (OR 4.276,  = 0.015). Although there was no effect regarding the length of a PFS, a patient-centered framing increased uploads compared to an EHR-centered framing (OR 4.043,  = 0.003).

CONCLUSION

Displaying PFSs at the beginning of an upload process is a cost-effective intervention to boost EHR adoption and increase uploads of medical reports. While the length of a PFS did not influence behavior, PFSs are maximally effective if they frame information in a way that emphasizes how users can exert control over their data. Willingness to upload medical data is key to the success of the EHR, including better treatments and lower costs.

摘要

背景

德国电子健康记录(EHR)旨在改善患者护理并降低成本,但用户常常担心数据安全问题。在本文中,我们提出并测试了沟通策略,以减轻隐私担忧并增加EHR上传量。

目的

我们探讨在用户必须决定是否在EHR中上传医疗报告之前展示隐私情况说明书(PFS)是否会增加他们这样做的意愿。我们的研究考察了PFS的框架和长度对这一决定的影响。

方法

在一项有227名德国参与者的在线用户研究中,我们使用了一个逼真的EHR点击模拟程序,并在PFS的长度(短与长)和框架(以EHR为中心与以患者为中心)方面进行了变化。

结果

结果表明,PFS对上传有积极影响(比值比4.276,P = 0.015)。虽然PFS的长度没有影响,但与以EHR为中心的框架相比,以患者为中心的框架增加了上传量(比值比4.043,P = 0.003)。

结论

在上传过程开始时展示PFS是一种具有成本效益的干预措施,可促进EHR的采用并增加医疗报告的上传量。虽然PFS的长度没有影响行为,但如果PFS以强调用户如何对其数据施加控制的方式构建信息,则其效果最佳。上传医疗数据的意愿是EHR成功的关键,包括更好的治疗和更低的成本。

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本文引用的文献

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Influence of Disease-Related Stigma on Patients' Decisions to Upload Medical Reports to the German Electronic Health Record: Randomized Controlled Trial.疾病污名对患者将医疗报告上传至德国电子健康记录决策的影响:随机对照试验。
JMIR Hum Factors. 2024 Apr 10;11:e52625. doi: 10.2196/52625.
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Extending the Privacy Calculus to the mHealth Domain: Survey Study on the Intention to Use mHealth Apps in Germany.将隐私演算扩展到移动健康领域:德国使用移动健康应用意愿的调查研究
JMIR Hum Factors. 2023 Aug 16;10:e45503. doi: 10.2196/45503.
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Patient Acceptance of Prescribed and Fully Reimbursed mHealth Apps in Germany: An UTAUT2-based Online Survey Study.
德国患者对处方和全额报销的移动健康应用程序的接受度:基于 UTAUT2 的在线调查研究。
J Med Syst. 2023 Jan 27;47(1):14. doi: 10.1007/s10916-023-01910-x.
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[Patient group-specific data sovereignty needs and acceptance of electronic health records].[患者群体特定的数据主权需求与电子健康记录的接受度]
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Electronic health record adopters: a typology based on patients' privacy concerns and perceived benefits.电子健康记录采用者:基于患者隐私关注和感知收益的分类。
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Applying an Extended UTAUT2 Model to Explain User Acceptance of Lifestyle and Therapy Mobile Health Apps: Survey Study.应用扩展的 UTAUT2 模型解释生活方式和治疗移动健康应用的用户接受度:调查研究。
JMIR Mhealth Uhealth. 2022 Jan 18;10(1):e27095. doi: 10.2196/27095.
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Do personal health concerns and trust in healthcare providers mitigate privacy concerns? Effects on patients' intention to share personal health data on electronic health records.个人健康问题和对医疗服务提供者的信任是否会减轻对隐私的担忧?对患者在电子健康记录中分享个人健康数据意愿的影响。
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