Mao Zhuxin, Finch Aureliano Paolo, Ahmed Shenaz, Zhang Guangjie, Ding Yifan, Yang Zhihao
Centre for Health Economics Research and Modelling Infectious Diseases (CHERMID), University of Antwerp, Antwerp, Belgium.
EuroQol Office, EuroQol Research Foundation, Rotterdam, the Netherlands.
Qual Life Res. 2025 Aug 20. doi: 10.1007/s11136-025-04045-3.
To explore similarities and differences in perceptions of quality of life (QoL) outcome, among different groups of populations, including patients, informal carers and the healthy general publics.
This study used Q-methodology, which combined both qualitative and quantitative components, to investigate the subjective constructions of QoL across the groups. We developed a list of 35 Q-sample items and collected a total of 151 Q-sort data for use in the standard by-person factor analytic procedure designed for Q-methodology. We also conducted post-sort interviews and obtained qualitative information about why the participants ranked the statements in certain ways.
We were able to identify four distinct viewpoints: Factor 1: Eat, sleep and other basic needs; Factor 2: Positive relationships, belongings and well-being; Factor 3: My own physical and mental health first; Factor 4: Physical health is the foundation of well-being. While Factor 4 was equally valued across all three categories of participants, Factor 2, which places a high value on positive relationships, was predominantly represented by carers. In contrast, patients tended to emphasise Factor 3, which focuses on individual feelings-particularly emotional and physical distress. Items related to pain, discomfort, and sleep were consistently identified as the most important across all four identified views.
This study presents the similarities and differences of the subjective constructions of QoL across patients, carers and the healthy general publics. It implies the variances of preferences in evaluating QoL, and such variances can consequently affect the measurement and evaluation of QoL.
探讨不同人群（包括患者、非正式护理人员和健康公众）对生活质量（QoL）结果认知的异同。
本研究采用结合了定性和定量成分的Q方法，以调查各群体对生活质量的主观建构。我们制定了一份包含35个Q样本项目的清单，并总共收集了151份Q分类数据，用于Q方法所设计的标准个人因素分析程序。我们还进行了分类后访谈，并获得了关于参与者为何以特定方式对陈述进行排序的定性信息。
我们能够识别出四种不同的观点：因素1：饮食、睡眠和其他基本需求；因素2：积极的人际关系、财产和幸福感；因素3：首先关注我自己的身心健康；因素4：身体健康是幸福的基础。虽然因素4在所有三类参与者中都受到同等重视，但高度重视积极人际关系的因素2主要由护理人员代表。相比之下，患者倾向于强调因素3，该因素关注个人感受，尤其是情绪和身体上的困扰。在所有四个已识别的观点中，与疼痛、不适和睡眠相关的项目一直被认为是最重要的。
本研究呈现了患者、护理人员和健康公众在生活质量主观建构方面的异同。这意味着在评估生活质量时存在偏好差异，而这种差异可能会影响生活质量的测量和评估。
