Toombs Elaine, Skov Brittany, Campbell Megan, Lund Jessie, Mushquash Christopher J
Department of Psychology, Lakehead University, Thunder Bay, ON, Canada.
Dilico Anishinabek Family Care, Fort William First Nation, ON, Canada.
Can J Public Health. 2025 Aug 25. doi: 10.17269/s41997-025-01090-w.
There has been increased efforts to identify wise practices among research efforts completed in partnership with Indigenous communities. Community-based participatory research (CBPR) has been a leading guideline for this work in recent years, as such frameworks emphasize collaboration, partnership, and community-guided efforts; however, no work to date has examined how various CBPR standards, ethical guidelines, and practices may vary by community or regional context.
The purpose of this scoping review was to summarize Indigenous-specific research practices among relevant frameworks, to identify more common collective values and practices, and other, potentially more unique or distinctive aspects of frameworks within Canadian, Australian, New Zealand, and United States (CANZUS) nation-based Indigenous communities. A scoping review of six databases to retrieve relevant literature describing community-based research principles, guidelines, and ethical standards specifically related to an Indigenous population or community.
We retrieved 46 sources proposing an Indigenous-based principle, guideline, and/or ethical standard. When these studies were descriptively analyzed, we derived eight common themes across these frameworks: Benefit to Community, Respect, Reciprocal Relationships, Recognize Diversity, Embed Indigenous Culture, Autonomous and Active Participation, Consultation, and Authenticity. Specific research practices that align within framework values across a research process were also identified across ten themes, and 38 sub-themes. Practices included Learn About Culture, Region, Community, or Nation, Establish and Maintain Meaningful Relationships, Community Engagement or Consultation, Project Design, Develop a Research Agreement, Data Agreement, and/or Protocols, Project Management, Methods, Data Analysis and Interpretation, Knowledge Translation and Exchange, and Post-Research Relationships.
Several common values and practices underscore many Indigenous community-based research guidelines, principles, and ethical standards. This review may be used to increase knowledge on Indigenous approaches to research across disciplines, facilitate the evaluation of research conducted with Indigenous communities, and assist communities in developing independent practices, principles, and ethical guidelines.
人们越来越努力在与原住民社区合作完成的研究工作中识别明智的做法。近年来，基于社区的参与性研究（CBPR）一直是这项工作的主要指导方针，因为此类框架强调合作、伙伴关系和社区主导的努力；然而，迄今为止，尚无研究探讨各种CBPR标准、伦理准则和做法如何因社区或地区背景而异。
本范围综述的目的是总结相关框架中针对原住民的研究实践，识别更常见的集体价值观和实践，以及加拿大、澳大利亚、新西兰和美国（CANZUS）基于国家的原住民社区框架中其他可能更独特或与众不同的方面。对六个数据库进行范围综述，以检索描述与原住民群体或社区特别相关的基于社区的研究原则、指南和伦理标准的相关文献。
我们检索到46篇提出基于原住民的原则、指南和/或伦理标准的文献。对这些研究进行描述性分析时，我们在这些框架中得出了八个共同主题：社区受益、尊重、互惠关系、认识多样性、融入原住民文化、自主和积极参与、协商以及真实性。还在十个主题和38个子主题中确定了在整个研究过程中与框架价值观一致的具体研究实践。实践包括了解文化、地区、社区或国家，建立和维持有意义的关系，社区参与或协商，项目设计，制定研究协议、数据协议和/或方案，项目管理，方法，数据分析与解释，知识转化与交流，以及研究后关系。
一些共同的价值观和实践强调了许多基于原住民社区的研究指南、原则和伦理标准。本综述可用于增加各学科对原住民研究方法的了解，促进对与原住民社区开展的研究的评估，并协助社区制定独立的实践、原则和伦理指南。
