Hassan Yasmine, Kautz Achim, James Cary, Lee Dee, Langenbacher Diane, Bouffet Eric, Chakowa Jade, Hicks Jessica, Ward John W, Kuschnereit Lili Anna, Allaire Manon, Zhang Tingting, Huang Chi Zeena
Department of Global Policy, Advocacy and Health Equity, AstraZeneca, Gaithersburg, MD, USA.
International Liver Cancer Movement, Cologne, Germany.
J Hepatocell Carcinoma. 2025 Aug 20;12:1849-1859. doi: 10.2147/JHC.S526170. eCollection 2025.
To establish a patient charter that articulates the principles of quality care for individuals living with hepatocellular carcinoma (HCC), aiming to improve patient outcomes and survival rates globally.
A multidisciplinary group comprising healthcare professionals, patient advocacy representatives, and policymakers convened to identify the critical areas of unmet need in HCC care. The group shared patient experiences, barriers, and insights - particularly with input from Patient Advocacy Groups (PAGs) - to better understand the challenges faced by patients. They reviewed existing literature, current care practices, and patient experiences to formulate a patient charter that outlines the principles of quality care for HCC.
The patient charter identifies the seven principles of quality care that people with HCC or at risk of developing HCC should expect to receive in order to benefit from improved outcomes and increased survival. These principles address the need for policy prioritization, early diagnosis, multidisciplinary care, personalized treatment, shared decision-making, stigma-free access to services and increased research funding.
The patient charter serves as a call to action for stakeholders to unite in enhancing the care and treatment of HCC, with the ultimate goal of improving health outcomes for patients.
制定一份患者宪章，阐明针对肝细胞癌（HCC）患者的优质护理原则，旨在提高全球患者的治疗效果和生存率。
一个由医疗保健专业人员、患者权益倡导代表和政策制定者组成的多学科小组召开会议，以确定HCC护理中未得到满足的关键需求领域。该小组分享了患者的经历、障碍和见解——特别是来自患者权益倡导团体（PAGs）的意见——以更好地了解患者所面临的挑战。他们回顾了现有文献、当前的护理实践和患者经历，以制定一份概述HCC优质护理原则的患者宪章。
患者宪章确定了优质护理的七项原则，HCC患者或有患HCC风险的人应期望获得这些原则，以便从改善治疗效果和提高生存率中受益。这些原则涉及政策优先排序、早期诊断、多学科护理、个性化治疗、共同决策、无歧视地获得服务以及增加研究资金的需求。
患者宪章呼吁利益相关者团结起来，加强对HCC的护理和治疗，最终目标是改善患者的健康状况。
