Muir C S, Nectoux J
Natl Cancer Inst Monogr. 1977 Dec;47:3-6.
The cancer registry can be defined as a facility for the collection, storage, analysis, and interpretation of data on persons with cancer. The possible range of registry activities was discussed in relation to the population-based cancer registry. These activities included service to the medical profession and hence the cancer patient, the provision of information for planning control measures, the evaluation of treatment and of screening programs, the conduct of epidemiologic studies, either directly or indirectly, and the education of the public and the medical profession. The resources of the cancer registry can be used in follow-up for industrial and other cohorts exposed to a variety of agents. Registries must be prepared to meet the problem of confidentiality that might arise when information in the registry is linked with other data sets. The value of a cancer registry increases when it becomes possible to examine and assess time trends. Unfortunately, many cancer registries were not adequately funded or staffed to exploit usefully the data already collected at considerable expenses. The three types of staff required to ensure full utilization were discussed.
癌症登记处可定义为收集、存储、分析和解释癌症患者数据的机构。结合基于人群的癌症登记处,讨论了登记处活动的可能范围。这些活动包括为医疗行业乃至癌症患者提供服务,为规划控制措施提供信息,评估治疗和筛查项目,直接或间接地开展流行病学研究,以及对公众和医疗行业进行教育。癌症登记处的资源可用于对接触各种因素的工业人群和其他队列进行随访。登记处必须准备好应对当登记处信息与其他数据集关联时可能出现的保密问题。当能够检查和评估时间趋势时,癌症登记处的价值就会增加。不幸的是,许多癌症登记处没有足够的资金或人员来有效利用已经花费大量资金收集的数据。讨论了确保充分利用所需的三类工作人员。