适应残疾的生活史模型：以“先天性截肢者”为例。

Life history model of adaptation to disability: the case of a 'congenital amputee'.

作者信息

Frank G

出版信息

Soc Sci Med. 1984;19(6):639-45. doi: 10.1016/0277-9536(84)90231-4.

Abstract

Life histories can be used to describe adaptation over time to disabling conditions and the context and meaning of disabilities. Data from the life history of Diane DeVries, a 33-year old woman born with quadralateral limb deficiencies (upper extremity hemimelia, lower extremity amelia) illustrate a model for eliciting, presenting and interpreting life histories of persons with disabilities. Substantively, the life history of Diane DeVries indicates, at this time, survival within a niche of institutional supports that include marriage, church membership, and government for the disabled. Her life history is also characterized by choices that support independent living in the community and a cognitive orientation toward her own cultural normality.

摘要

生命历程可用于描述随着时间推移对致残状况的适应以及残疾的背景和意义。来自33岁的黛安·德弗里斯（Diane DeVries）的生命历程数据，她出生时患有四肢缺如（上肢半肢畸形、下肢无肢畸形），说明了一种用于引出、呈现和解读残疾人生命历程的模式。从实质上看，黛安·德弗里斯的生命历程表明，目前她在包括婚姻、教会成员身份和政府对残疾人的支持等制度支持的特定环境中生存。她的生命历程还具有支持在社区独立生活的选择以及对自身文化常态的认知取向的特点。