Johnston D, Stall R, Smith K
Joint Program in Medical Anthropology, University of California, San Francisco, USA.
AIDS Care. 1995;7(3):307-19. doi: 10.1080/09540129550126533.
A group of gay-identified men (n = 81) and intravenous drug users (n = 88) diagnosed with AIDS in San Francisco were interviewed regarding their use of friends and family to meet their care needs. Analytic of quantitative data revealed that gay men relied more than did IDUs on friends for care. Neither group relied primarily on their families for care. Analysis of the qualitative data identified five primary barriers to care. First, many people with AIDS are not accustomed to asking for help and often avoid it when possible. Second, the social stigma surrounding AIDS sometimes leads to isolation. Third, some people with AIDS have kin with health problems of their own, thereby sometimes compromising this potential source of care. Fourth, the AIDS epidemic has devastated identifiable sub-populations, leaving surviving members of these groups emotionally exhausted and sometimes unable to provide as much help as they might have liked. Finally, some respondents choose to voluntarily cut themselves off from 'supportive' relationships that they perceive to be destructive now that they have been diagnosed with a fatal illness. Professional care providers and health care planners should be aware of dynamics within informal care networks of people with AIDS that may leave patients without necessary care.
对旧金山81名确诊患有艾滋病的同性恋身份男性和88名静脉注射吸毒者就其利用朋友和家人满足护理需求的情况进行了访谈。对定量数据的分析显示,与静脉注射吸毒者相比,同性恋男性在护理方面更依赖朋友。两组都不主要依赖家人提供护理。对定性数据的分析确定了护理的五个主要障碍。第一,许多艾滋病患者不习惯寻求帮助,并且尽可能避免寻求帮助。第二,围绕艾滋病的社会污名有时会导致孤立。第三,一些艾滋病患者的亲属自身也有健康问题,从而有时会影响这一潜在的护理来源。第四,艾滋病疫情摧毁了可识别的亚人群体,使这些群体的幸存者情绪疲惫,有时无法提供他们原本希望提供的那么多帮助。最后,一些受访者选择自愿断绝他们认为现在已诊断出患有致命疾病后具有破坏性的“支持性”关系。专业护理人员和医疗保健规划者应了解艾滋病患者非正式护理网络中的动态情况,这些动态情况可能使患者得不到必要的护理。