Child, Youth, Family and Social Development, Human Sciences Research Council, South Africa.
J Int AIDS Soc. 2010 Jun 23;13 Suppl 2(Suppl 2):S1. doi: 10.1186/1758-2652-13-S2-S1.
Family-centred services in the context of HIV/AIDS acknowledge a broad view of a "family system" and ideally include comprehensive treatment and care, community agencies and coordinated case management. The importance of family-centred care for children affected by HIV/AIDS has been recognized for some time. There is a clear confluence of changing social realities and the needs of children in families affected by HIV and AIDS, but a change of paradigm in rendering services to children through families, in both high-prevalence and concentrated epidemic settings, has been slow to emerge.Despite a wide variety of model approaches, interventions, whether medical or psychosocial, still tend to target individuals rather than families. It has become clear that an individualistic approach to children affected by HIV and AIDS leads to confusion and misdirection of the global, national and local response. The almost exclusive focus on orphans, defined initially as a child who had lost one or both parents to AIDS, has occluded appreciation of the broader impact on children exposed to risk in other ways and the impact of the epidemic on families, communities and services for children. In addition, it led to narrowly focused, small-scale social welfare and case management approaches with little impact on government action, global and national policy, integration with health and education interventions, and increased funding.National social protection programmes that strengthen families are now established in several countries hard hit by AIDS, and large-scale pilots are underway in others. These efforts are supported by international and national development agencies, increasingly by governments and, more recently, by UNAIDS and the global AIDS community.There is no doubt that this is the beginning of a road and that there is still a long way to go, including basic research on families, family interventions, and effectiveness and costs of family-centred approaches. It is also clear that many of the institutions that are intended to serve families sometimes fail and frequently even combat non-traditional families.
以家庭为中心的服务在艾滋病毒/艾滋病的背景下承认了对“家庭系统”的广泛看法,并理想地包括全面的治疗和护理、社区机构和协调的病例管理。一段时间以来,人们一直认识到以家庭为中心的护理对受艾滋病毒/艾滋病影响的儿童的重要性。在高流行和集中流行的环境中,通过家庭向儿童提供服务的范式转变虽然受到不断变化的社会现实和受艾滋病毒/艾滋病影响家庭中儿童的需求的推动,但进展缓慢。尽管有各种各样的模式方法,但医疗或心理社会干预措施仍然倾向于针对个人而不是家庭。很明显,对受艾滋病毒/艾滋病影响的儿童采取的个人主义方法会导致全球、国家和地方应对措施的混乱和误导。几乎完全关注孤儿,最初将孤儿定义为因艾滋病失去父母一方或双方的儿童,这使得人们无法理解儿童受到其他风险因素影响的更广泛影响,以及该流行病对家庭、社区和儿童服务的影响。此外,这导致了狭隘的、小规模的社会福利和病例管理方法,对政府行动、全球和国家政策、与卫生和教育干预措施的整合以及资金增加几乎没有影响。在几个受艾滋病严重影响的国家,现在已经建立了加强家庭的国家社会保护方案,其他国家也在进行大规模试点。这些努力得到了国际和国家发展机构的支持,越来越多的是各国政府的支持,最近还得到了艾滋病规划署和全球艾滋病界的支持。毫无疑问,这是一个开端,还有很长的路要走,包括对家庭的基础研究、家庭干预以及以家庭为中心的方法的有效性和成本。同样清楚的是,许多旨在为家庭服务的机构有时会失败,而且经常甚至会与非传统家庭对抗。