Marteau T M, Drake H
United Medical School of Guy's, London, England.
Soc Sci Med. 1995 Apr;40(8):1127-32. doi: 10.1016/0277-9536(94)00180-2.
There is currently much debate on how the widespread availability of prenatal testing for fetal abnormalities influences attributions for the birth of children with disabilities. The aim of the current study is to determine how the birth of a child with Down syndrome is explained when information is provided on whether the mother underwent testing in pregnancy, and the reasons for that. Using a between subjects design, four groups (pregnant women, general samples of men and women, geneticists and obstetricians) from three EC countries (Germany, Portugal and the U.K.) completed one of two vignettes. The vignettes described a mother giving birth to a child with Down syndrome, in one, following her decline of the offer of testing, in the other, following no offer of test from the hospital. Subjects rated the mother's perceived control over the outcome, the extent to which she was to blame, and the extent to which health professionals might be to blame. In all three countries and for all study groups, screening history of the mother was the single most important factor influencing attributions of control and blame following the birth of a child with Down syndrome. A mother who declined the offer of testing was seen as having control over this outcome, and was in part blamed for it. The results of this study suggest that both health professionals and lay groups make judgments about women's roles in the birth of children with disabilities. These findings require replication in studies assessing attributions rated from spontaneous speech, of people with personal and professional experiences of the births of children with disabilities.(ABSTRACT TRUNCATED AT 250 WORDS)
目前,关于胎儿异常的产前检测广泛普及如何影响对残疾儿童出生原因的归因存在诸多争议。本研究的目的是确定当提供母亲在孕期是否接受检测及其原因的信息时,人们如何解释唐氏综合征患儿的出生。采用组间设计,来自三个欧盟国家(德国、葡萄牙和英国)的四组人群(孕妇、普通男女样本、遗传学家和产科医生)完成了两个案例中的一个。案例描述了一位母亲生下患有唐氏综合征的孩子,其中一个案例是母亲拒绝了检测提议,另一个案例是医院未提供检测。受试者对母亲对结果的感知控制程度、她应承担责任的程度以及健康专业人员可能应承担责任的程度进行评分。在所有三个国家以及所有研究组中,母亲的筛查史是影响唐氏综合征患儿出生后控制和责任归因的唯一最重要因素。拒绝检测提议的母亲被视为对这一结果有控制权,并因此受到部分指责。本研究结果表明,健康专业人员和普通人群都会对女性在残疾儿童出生中的角色做出判断。这些发现需要在评估从自发言语中得出的归因的研究中进行重复验证,这些研究涉及有残疾儿童出生的个人和专业经历的人群。(摘要截选至250字)