Catalan J, Brener N, Andrews H, Day A, Cullum S, Hooker M, Gazzard B
Department of Psychological Medicine, Charing Cross and Westminster Medical School, London, UK.
AIDS Care. 1994;6(3):349-56. doi: 10.1080/09540129408258647.
The views of people with HIV and their professional carers about patients' views on involvement in decision-making and information-seeking were studied, using a standardized self-report instrument. Patients and staff reported high levels of desire for patients' involvement in their care, but there were important differences between groups. Staff had higher preference for patients' involvement in decision-making than the patients themselves, while the opposite was the case for information-seeking. There were differences between professional groups and symptomatic and asymptomatic patients, social workers generally reporting higher preference for patients' autonomy, while doctors reported lower levels. Symptomatic patients tended to have lower preference for autonomy than asymptomatic ones. The significance and practical implications of the findings are discussed.
使用标准化的自我报告工具，研究了艾滋病毒感染者及其专业护理人员对患者参与决策和寻求信息的看法。患者和工作人员都表示非常希望患者参与自身护理，但不同群体之间存在重要差异。工作人员比患者本人更倾向于让患者参与决策，而在寻求信息方面则相反。不同专业群体以及有症状和无症状患者之间存在差异，社会工作者总体上对患者自主权的偏好更高，而医生的偏好较低。有症状的患者对自主权的偏好往往低于无症状患者。讨论了研究结果的意义和实际影响。
