Pijnenborg L, van der Maas P J, van Delden J J, Looman C W
Department of Public Health, Erasmus University, Rotterdam, Netherlands.
Lancet. 1993 May 8;341(8854):1196-9. doi: 10.1016/0140-6736(93)91014-d.
In the Dutch nationwide study on medical decisions concerning the end of life (MDEL) life-terminating acts without the explicit request of the patient (LAWER) were noted in 0.8% of all deaths. We present here quantitative information and a discussion of the main issues raised by LAWER. In 59% of LAWER the physician had some information about the patient's wish; in 41% discussion on the decision would no longer have been possible. In LAWER patients tend to be younger and more likely to be male and to have cancer than in non-acute deaths generally. The physician (specialist or general practitioner) knew the patient on average 2.4 years and 7.2 years, respectively. Life was shortened by between some hours and a week at most in 86%. In 83% the decision has been discussed with relatives and in 70% with a colleague. In nearly all cases, according to the physician, the patient was suffering unbearably, there was no chance of improvement, and palliative possibilities were exhausted. MDEL probably will increase in number in future but interviews with Dutch physicians suggest a possible fall in LAWER, even though there will always be some situations in which a well-considered LAWER decision may have to be made.
在荷兰关于临终医疗决策的全国性研究(MDEL)中,在所有死亡案例的0.8%中记录到了未经患者明确请求的终止生命行为(LAWER)。我们在此呈现关于LAWER的定量信息以及对其所引发主要问题的讨论。在59%的LAWER案例中,医生掌握了一些关于患者意愿的信息;在41%的案例中,关于该决策的讨论已不再可行。与一般非急性死亡案例相比,LAWER案例中的患者往往更年轻,男性比例更高,且患癌症的可能性更大。医生(专科医生或全科医生)与患者平均相识时间分别为2.4年和7.2年。在86%的案例中,生命至多缩短了数小时至一周时间。在83%的案例中与亲属进行了决策讨论,在70%的案例中与同事进行了讨论。根据医生的说法,几乎在所有案例中,患者都承受着无法忍受的痛苦,没有好转的机会,并且姑息治疗的可能性已用尽。未来MDEL的数量可能会增加,但对荷兰医生的访谈表明LAWER可能会减少,尽管总会存在一些情况需要做出经过深思熟虑的LAWER决策。