Jacoby A, Baker G, Smith D, Dewey M, Chadwick D
Centre for Health Services Research, University of Newcastle upon Tyne, UK.
Epilepsy Res. 1993 Sep;16(1):83-8. doi: 10.1016/0920-1211(93)90042-6.
The impact of a chronic illness is experienced not only through its physical symptoms, but also as a result of its effect on psychosocial functioning. In the case of an illness such as epilepsy, where the physical manifestations are transient, the psychosocial consequences may, with time, come to be of greater concern. We have been involved in developing a quality of life model for epilepsy. As part of the refinement of the initial model, we have devised a novel scale to measure the impact of the condition on a number of different aspects of daily life. The scale was administered to 75 patients attending an epilepsy out-patient clinic. Initial analysis of its psychometric properties is encouraging, although the inclusion of an item relating to employment reduced the scale's reliability. As a result, the wording of the existing item has been amended and an additional item has been incorporated. We hope the scale will be useful in investigations of treatment for epilepsy and of its psychosocial aspects.
慢性病的影响不仅体现在身体症状上，还因其对心理社会功能的影响而显现。对于癫痫这类疾病，其身体表现是短暂的，随着时间推移，心理社会后果可能会更令人担忧。我们参与了癫痫生活质量模型的开发。作为初始模型完善工作的一部分，我们设计了一个新颖的量表，以衡量该疾病对日常生活多个不同方面的影响。该量表应用于75名癫痫门诊患者。尽管包含一项与就业相关的条目降低了量表的信度，但其心理测量特性的初步分析结果令人鼓舞。因此，对现有条目的措辞进行了修改，并纳入了一个额外的条目。我们希望该量表将有助于癫痫治疗及其心理社会方面的研究。
