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儿童透析与移植项目成年幸存者的心理社会调适

Psychosocial adjustment of adult survivors of a paediatric dialysis and transplant programme.

作者信息

Reynolds J M, Morton M J, Garralda M E, Postlethwaite R J, Goh D

机构信息

Department of Psychiatry, Booth Hall Children's Hospital, University of Manchester.

出版信息

Arch Dis Child. 1993 Jan;68(1):104-10. doi: 10.1136/adc.68.1.104.

DOI:10.1136/adc.68.1.104
PMID:8434993
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC1029194/
Abstract

The social adjustment of 45 young adult renal patients who commenced treatment for end stage renal disease (ESRD) as children and of 48 age and sex matched controls were compared. Renal patients were less socially mature than controls. More lived with their parents, fewer had an intimate relationship outside the family, they had fewer school qualifications, and there was more unemployment among them. The majority, however, were in employment and the level of subjective stress and support derived from most of these areas was comparable in renal patients and in controls. Having a close relationship with a member of the opposite sex was the only domain in which renal patients reported more stress than controls. Early start of illness and current health problems were associated with poorer social outcome. A lifelong history of ESRD leads to suboptimal or delayed social functioning on conventional indicators. However this does not lead to increased overall distress in the patients about their social circumstances and quality of life does not appear to be substantially impaired.

摘要

对45名儿童期开始接受终末期肾病(ESRD)治疗的年轻成年肾病患者以及48名年龄和性别匹配的对照组进行了社会适应情况比较。肾病患者的社会成熟度低于对照组。更多患者与父母同住,较少患者在家庭之外有亲密关系,他们的学历较低,且失业率更高。然而,大多数患者都有工作,肾病患者和对照组在这些方面所感受到的主观压力和获得的支持水平相当。与异性成员建立亲密关系是肾病患者报告比对照组压力更大的唯一领域。疾病的早期发作和当前的健康问题与较差的社会结果相关。ESRD的终身病史导致传统指标上的社会功能欠佳或延迟。然而,这并不会导致患者对其社会状况的总体痛苦增加,生活质量似乎也没有受到实质性损害。

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本文引用的文献

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