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囊性纤维化的营养管理。

Nutritional management of cystic fibrosis.

作者信息

MacDonald A

机构信息

Dietetic Services, Children's Hospital, Birmingham.

出版信息

Arch Dis Child. 1996 Jan;74(1):81-7. doi: 10.1136/adc.74.1.81.

DOI:10.1136/adc.74.1.81
PMID:8660059
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC1511597/
Abstract

Nutritional support is an integral part of the management of cystic fibrosis patients. It is arguably best provided by a qualified dietitian and nutritional care sister working in conjunction with the rest of the cystic fibrosis team. The patient's nutritional needs should be assessed, regularly reviewed, and nutritional treatment tailored to meet the changing clinical and psychosocial needs of the patient. Nutritional intervention is not without complications, and in particular attention to normal feeding behaviour and vigilance when instituting supplementary nutrition may prevent many feeding difficulties.

摘要

营养支持是囊性纤维化患者治疗的一个组成部分。可以说,由一名合格的营养师和营养护理护士与囊性纤维化治疗团队的其他成员共同提供营养支持是最佳方式。应评估患者的营养需求,定期进行复查,并根据患者不断变化的临床和心理社会需求调整营养治疗方案。营养干预并非没有并发症,尤其要注意正常的喂养行为,并在实施补充营养时保持警惕,这样可能会避免许多喂养困难。

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本文引用的文献

1
Effect of double-blind crossover selenium supplementation on biological indices of selenium status in cystic fibrosis patients.
Clin Chem. 1993 Jun;39(6):1023-8.
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Correction of vitamin E deficiency with fat-soluble versus water-miscible preparations of vitamin E in patients with cystic fibrosis.
J Pediatr. 1993 May;122(5 Pt 1):810-2. doi: 10.1016/s0022-3476(06)80034-x.
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Vitamin therapy in cystic fibrosis--a review and rationale.囊性纤维化的维生素治疗——综述与理论依据
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Relationships among nutritional status and skeletal and respiratory muscle function in cystic fibrosis: does early dietary supplementation make a difference?
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Bone mineral density and body composition in adult patients with cystic fibrosis.成年囊性纤维化患者的骨矿物质密度和身体成分
Thorax. 1993 Jun;48(6):589-93. doi: 10.1136/thx.48.6.589.
6
Increasing calorie consumption in children with cystic fibrosis: replication with 2-year follow-up.增加囊性纤维化患儿的热量摄入:两年随访的重复研究
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Osteopenia in adults with cystic fibrosis.成年囊性纤维化患者的骨质减少
Am J Med. 1994 Jan;96(1):27-34. doi: 10.1016/0002-9343(94)90112-0.
8
Improvement of nutritional status and lung function after long-term nocturnal gastrostomy feedings in cystic fibrosis.囊性纤维化患者长期夜间经胃造口管喂养后营养状况和肺功能的改善
J Pediatr. 1994 Feb;124(2):244-9. doi: 10.1016/s0022-3476(94)70312-4.
9
Cystic fibrosis presenting as kwashiorkor with florid skin rash.表现为夸希奥科病并伴有皮疹的囊性纤维化
Arch Dis Child. 1993 Oct;69(4):446-8. doi: 10.1136/adc.69.4.446.
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Lipid levels in adults with cystic fibrosis.
J Am Diet Assoc. 1994 Apr;94(4):402-8. doi: 10.1016/0002-8223(94)90095-7.