Oliver D
Wisdom Hospice, Rochester, Kent, UK.
J Neurol Sci. 1996 Aug;139 Suppl:134-6. doi: 10.1016/0022-510x(96)00087-1.
The quality of care in the terminal phase of ALS/MND depends critically on the palliative care provided throughout the disease process. A retrospective review of 52 patients shows that patients with multiple symptoms and care needs can be cared for, and die, at home. To ensure that the care of patients is co-ordinated and allows patients and family to be cared for where they wish, a team approach is required. A co-ordinated team approach, involving health care, social services and voluntary groups, is described.
肌萎缩侧索硬化症/运动神经元病终末期的护理质量关键取决于疾病全过程中所提供的姑息治疗。对52例患者的回顾性研究表明,有多种症状和护理需求的患者能够在家中得到照料并离世。为确保患者护理得到协调,并使患者及其家人能在他们希望的地方接受照料,需要采用团队协作的方法。本文描述了一种由医疗保健、社会服务和志愿团体共同参与的协调团队协作方法。