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药物治疗、慢性病与身份认同:哮喘患者的视角

Medication, chronic illness and identity: the perspective of people with asthma.

作者信息

Adams S, Pill R, Jones A

机构信息

Department of General Practice, University of Wales College of Medicine, Llanedeyrn Health Centre, Cardiff, U.K.

出版信息

Soc Sci Med. 1997 Jul;45(2):189-201. doi: 10.1016/s0277-9536(96)00333-4.

Abstract

The issue of compliance with prescribed medication has traditionally been dominated by the perspective of the health professional although increasingly sociologists, using qualitative methods, have begun to present the patients' point of view. However, little has been published on asthma, despite the numbers of people suffering from this chronic condition and the amount of medication regularly prescribed. This paper focuses on the perspective of a sample of S. Wales (U.K.) asthma patients who have all been prescribed prophylactic medication in the last 12 months and explores their attitudes to medication in the context of their everyday lives, using inductive qualitative research methods. Two main groups were identified: the deniers and the accepters. They differed fundamentally in their readiness to accept the identity of asthma sufferer which, in turn, was associated with very different beliefs about the nature of their problem and the meaning of the medication prescribed for it. There was also marked differences in their strategies of self-presentation and disclosure and their pattern of medication use, particularly for prophylactic medication. A third group, the pragmatists, were also identified as a possible sub-group of the accepter category who are less open within self-presentation and less consistent in their beliefs about asthma but do not reject the label entirely. Identity work, i.e. the way the respondents interpreted the social identity of asthma sufferers and managed to reconcile it with other social identities, is proposed as the most useful way of understanding the observed variation in the way people diagnosed as asthmatic conceptualise and use their medication.

摘要

传统上,尽管越来越多的社会学家开始运用定性方法来呈现患者的观点,但遵医嘱服药这一问题一直主要由医疗专业人员的视角主导。然而,尽管有大量的人患有这种慢性病且经常需要开具药物治疗,但关于哮喘的相关研究却很少。本文聚焦于英国南威尔士的一组哮喘患者样本,这些患者在过去12个月内均被开具了预防性药物,并运用归纳定性研究方法,探讨他们在日常生活背景下对药物治疗的态度。研究确定了两个主要群体:否认者和接受者。他们在接受哮喘患者身份的意愿上存在根本差异,而这又与他们对自身问题本质以及所开药物意义的截然不同的信念相关。他们在自我呈现和披露策略以及用药模式上也存在显著差异,尤其是在预防性用药方面。还确定了第三个群体,即实用主义者,他们可能是接受者群体中的一个子群体,在自我呈现方面不那么开放,对哮喘的信念也不太一致,但并不完全拒绝这个标签。身份建构,即受访者解释哮喘患者社会身份并设法使其与其他社会身份相协调的方式,被认为是理解被诊断为哮喘患者在概念化和使用药物方式上观察到的差异的最有用方法。

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